Evidence map›Paper›PMID 36913646›Full record

ArticleDementia (London, England)2023

Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia.

Candace L Kemp, Alexis A Bender, Jennifer Craft Morgan, Elisabeth O Burgess, Fayron R Epps, Andrea Michelle Hill, Molly M Perkins

Abstract read
In one paragraph

Article in Dementia (London, England), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Examining Engagement Calendar Deviations in Assisted Living: A Focus on Residents With Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
  5. Article
  6. 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024
    Article
  7. Bioethics in Gerontology: Developing a Typology of Ethical Issues in Assisted Living.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024
    Article
  8. "Just Join Them": Improv and Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Candace L KempThe Gerontology Institute, 1373Georgia State University, Atlanta, GA, USA.ORCID 0000-0003-4232-4313
Alexis A BenderDivision of Geriatric & Gerontology, 12239Emory University School of Medicine, Atlanta, GA, USA.ORCID 0000-0002-7900-923X
Jennifer Craft MorganThe Gerontology Institute, 1373Georgia State University, Atlanta, GA, USA.ORCID 0000-0002-5647-9183
Elisabeth O BurgessDepartment of Sociology, 1373Georgia State University, Atlanta, GA, USA.ORCID 0000-0002-5741-8083
Fayron R EppsNell Hodgson Woodruff School of Nursing, 1371Emory University, Atlanta, GA, USA.ORCID 0000-0002-4332-4078
Andrea Michelle HillThe Gerontology Institute, 1373Georgia State University, Atlanta, GA, USA.
Molly M PerkinsDivision of Geriatric & Gerontology, 1371Emory University School of Medicine, Atlanta, GA, USA.ORCID 0000-0001-5993-8712

Funding

Meaningful Engagement and Quality of Life among Assisted Living Residents with Dementia.R01AG062310 · NIA · GEORGIA STATE UNIVERSITY · PI KEMP, CANDACE LYNN · 2018 to 2022
$3.6M
Investigating Informal Caregivers' Involvement in End-of-Life Care among Assisted Living Residents with Advanced Dementia and its Influence on Resident and Caregiver OutcomesRF1AG069114 · NIA · EMORY UNIVERSITY · PI PERKINS, MOLLY M · 2021 to 2021
$2.2M
Creating a Faith-Based Toolbox for African Americans Living with Moderate and Severe DementiaK23AG065452 · NIA · EMORY UNIVERSITY · PI EPPS, FAYRON RECHA · 2020 to 2022
$574k
NIA NIH HHS K23 AG065452NIA NIH HHS R01 AG062310NIA NIH HHS RF1 AG069114
6 · The paper itself

Abstract

Meaningful engagement is a key dimension of quality of life among persons living with dementia, yet little is known about how to best to promote it. Guided by grounded theory methods, we present analysis of data collected over a 1-year period in four diverse assisted living (AL) communities as part of the study, "Meaningful Engagement and Quality of Life among Assisted Living Residents with Dementia." Our aims are to: (a) learn how meaningful engagement is negotiated among AL residents with dementia and their care partners; and (b) identify how to create these positive encounters. Researchers followed 33 residents and 100 care partners (formal and informal) and used participant observation, resident record review, and semi-structured interviews. Data analysis identified "engagement capacity" as central to the negotiation of meaningful engagement. We conclude that understanding and optimizing the engagement capacities of residents, care partners, care convoys, and settings, are essential to creating and enhancing meaningful engagement among persons living with dementia.

Indexed as

Assisted Living FacilitiesDementiaHumansQuality of Lifecare relationshipslong-term caremeaningful engagementqualitative researchquality of carequality of life

Identifiers

PMID36913646
PMCPMC10789114

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.