Evidence map›Paper›PMID 36910746›Full record

ArticleFrontiers in psychology2023

Quality of life in parents of autistic children: A transcultural perspective.

Valsamma Eapen, Lisa Karlov, James Rufus John, Carmen Beneytez, Poppy Z Grimes, Ying Qi Kang, Ileana Mardare, Dana Galieta Minca, Laura Voicu, Khasnur Abd Malek and 4 more

Abstract read
In one paragraph

Article in Frontiers in psychology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed.

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  12. Quality of Life in Hungarian Parents of Autistic Individuals.Journal of autism and developmental disorders · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Valsamma EapenDiscipline of Psychiatry, Faculty of Medicine, University of New South Wales, Sydney, NSW, Australia.
Lisa KarlovDiscipline of Psychiatry, Faculty of Medicine, University of New South Wales, Sydney, NSW, Australia.
James Rufus JohnDiscipline of Psychiatry, Faculty of Medicine, University of New South Wales, Sydney, NSW, Australia.
Carmen BeneytezEquipo Especifico Alteraciones Graves del Desarrollo, Consejería de Educación de Madrid, Madrid, Spain.
Poppy Z GrimesSwalcliffe Park School CIO, Oxfordshire, United Kingdom.
Ying Qi KangDepartment of Paediatrics, Khoo Teck Puat-National University Children's Medical Institute (KTP-NUCMI), National University Hospital, Singapore, Singapore.
Ileana MardareCarol Davila University of Medicine and Pharmacy Bucharest, Bucharest, Romania.
Dana Galieta MincaCarol Davila University of Medicine and Pharmacy Bucharest, Bucharest, Romania.
Laura VoicuCarol Davila University of Medicine and Pharmacy Bucharest, Bucharest, Romania.
Khasnur Abd MalekDepartment of Primary Care Medicine, Faculty of Medicine, Universiti Teknologi MARA (UiTM), Sungai Buloh, Malaysia.
Aishworiya RamkumarDepartment of Paediatrics, Khoo Teck Puat-National University Children's Medical Institute (KTP-NUCMI), National University Hospital, Singapore, Singapore.
Krisztina StefanikInstitute of Special Needs Education for People with Atypical Behavior and Cognition, ELTE University Budapest, Budapest, Hungary.
Miklos GyoriHAS-ELTE 'Autism in Education' Research Group, Budapest, Hungary.
Marta Volgyesi-MolnarHAS-ELTE 'Autism in Education' Research Group, Budapest, Hungary.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Introduction: The concepts of health, illness, and disability as well as the perceptions of autism and quality of life (QoL) vary greatly across cultures and across time. This study sought to explore the interplay of culture on QoL and impact on parents caring for autistic children. Methods: We used a transcultural dataset from seven countries (Australia, Hungary, Malaysia, Romania, Singapore, Spain, and the United Kingdom) with participating parents/carers reporting on the Quality of Life in Autism (QoLA) questionnaire. The QoLA questionnaire is a validated measure of QoL for parents of autistic children, with Part A subscale measuring parental QoL and part B subscale assessing the parental impact of the child's autism spectrum disorder (ASD) symptoms or features. We used the Quade's ranked analysis of covariance to determine significant differences between the countries in relation to QoLA Part A and Part B scores while adjusting for baseline differences using covariates such as parents' gender, child's age, and gender. Additionally, a Results and conclusion: We found that while the effect of features of ASD (Part B subscale) stayed strongly comparable between cultures, the self-reported parental QoL was most likely determined by different aspects of culture in different countries. It is concluded that while the ASD symptoms or features appear to affect parents in the same way across different countries, the parental QoL may be a culturally informed construct.

Indexed as

autismcarersparentsquality of lifetranscultural

Identifiers

PMID36910746
PMCPMC9996029

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.