Evidence map›Paper›PMID 36901401›Full record

ArticleInternational journal of environmental research and public health2023

Community Health Representatives as Trusted Sources for Increasing Representation of American Indian Communities in Clinical Research.

Samantha Sabo, Naomi Lee, Grant Sears, Dulce J Jiménez, Marissa Tutt, Jeffersson Santos, Omar Gomez, Nicolette Teufel-Shone, Marianne Bennet, J T Neva Nashio and 2 more

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Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Article
  3. Review
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Samantha SaboCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.ORCID 0000-0003-4509-9182
Naomi LeeDepartment of Chemistry and Biochemistry, Northern Arizona University, Flagstaff, AZ 86011, USA.ORCID 0000-0003-0010-6668
Grant SearsCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.
Dulce J JiménezCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.ORCID 0000-0003-2962-7467
Marissa TuttCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.
Jeffersson SantosCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.ORCID 0000-0002-7938-9420
Omar GomezCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.
Nicolette Teufel-ShoneCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.ORCID 0000-0002-7548-819X
Marianne BennetRiver People Health Center, Scottsdale, AZ 85256, USA.
J T Neva NashioWhite Mountain Apache Tribe CHR Program, Whiteriver, AZ 85941, USA.
Fernando FloresColorado River Indian Tribes, Parker, AZ 85344, USA.
Julie BaldwinCenter for Health Equity Research, Northern Arizona University, Flagstaff, AZ 86011, USA.ORCID 0000-0003-1872-1925

Funding

NHLBI Maternal Morbidity and Mortality (3M) Administrative Coordinating CenterOT2HL158287 · NHLBI · WESTAT, INC. · PI Chanza Baytop · 2020 to 2026
$433.8M
SSCIMA: Integrating Analysis of Socio-economic Sub-population Dynamics to Improve Spatial Models of Infectious DiseaseU54MD012388 · NIMHD · NORTHERN ARIZONA UNIVERSITY · PI Julie A. Baldwin · 2017 to 2026
$49.7M
NHLBI NIH HHS OT2 HL158287NIMHD NIH HHS U54 MD012388
6 · The paper itself

Abstract

Indigenous and American Indian Alaskan Native (AI/AN) community members are systematically underrepresented in clinical trial research. This paper focuses on exploratory steps to partner with Native Nations of Arizona to engage Community Health Representatives (CHR) as a trusted source for building COVID-19 clinical trial research, including vaccine trials awareness. CHRs are frontline public health workers who apply a unique understanding of the experience, language, and culture of the population served. This workforce has entered the spotlight as essential to the prevention and control of COVID-19.

methodsThree Tribal CHR programs were engaged to develop and refine culturally centered educational materials and a pre-post survey using a consensus-based decision-making approach. CHRs used these materials in brief education sessions during regular client home visits and community events.

resultsAt 30 days post CHR intervention, participants (N = 165) demonstrated significantly increased awareness about and ability to enroll in COVID-19 treatment and vaccine trials. Participants also described a significant increase in trust in researchers, decreased perceived barriers related to cost for participation in a clinical trial, and improved belief that participation in a COVID-19 clinical trial for treatment was considered a benefit to American Indian and Alaskan Native people.

conclusionCHRs as trusted sources of information, coupled with culturally centered education materials designed by CHRs for CHR clients, demonstrated a promising approach to improved awareness of clinical trial research generally and COVID-19 trials specifically among Indigenous and American Indian community members of Arizona.

Indexed as

Community Health WorkersCOVID-19Indians, North AmericanAmerican Indian or Alaska NativeCOVID-19 Drug TreatmentCOVID-19 VaccinesHumansPublic HealthTrustCOVID-19 VaccinesAmerican Indianclinical trial participationcommunity health representativescultural humilityequity

Identifiers

PMID36901401
PMCPMC10001500

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.