Evidence map›Paper›PMID 36901136›Full record

ArticleInternational journal of environmental research and public health2023

Living with Endometriosis: A Narrative Analysis of the Experiences of Kenyan Women.

Sadie Bergen, Doris Murimi, Caitlin Gruer, Gibson Munene, Atunga Nyachieo, Maureen Owiti, Marni Sommer

Open access · goldFull text read
In one paragraph

Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed, 2 pooled it
4.4field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 2 syntheses or guidelines pooled it, 16 citations in OpenAlex.

  1. Pooled it
  2. Experiences of pain communication in endometriosis: A meta-synthesis.Acta obstetricia et gynecologica Scandinavica · 2025
    Pooled it
  3. Article
  4. Article
  5. "Frontiers in global women's health · 2026
    Article
  6. Article
  7. Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 2 countries.

Sadie BergenDepartment of Sociomedical Sciences, Mailman School of Public Health, Columbia University, 722 W. 168th Street, New York, NY 10032, USA.
Doris MurimiEndo Sisters East Africa Foundation, Laiboni Center, Off Lenana Rd., Nairobi P.O. Box 100798-00101, Kenya.
Caitlin GruerDepartment of Sociomedical Sciences, Mailman School of Public Health, Columbia University, 722 W. 168th Street, New York, NY 10032, USA.
Gibson MuneneEndo Sisters East Africa Foundation, Laiboni Center, Off Lenana Rd., Nairobi P.O. Box 100798-00101, Kenya.
Atunga NyachieoInstitute of Primate Research, Karen, Nairobi P.O. Box 24481-00502, Kenya.ORCID 0000-0002-7906-5311
Maureen OwitiThe Department of Obstetrics and Gynaecology, Kenyatta National Hospital, Nairobi P.O. Box 20723-00202, Kenya.
Marni SommerDepartment of Sociomedical Sciences, Mailman School of Public Health, Columbia University, 722 W. 168th Street, New York, NY 10032, USA.
Columbia University · USInstitute of Primate Research · KEKenyatta National Hospital · KE

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Despite the high global prevalence of endometriosis, little is known about the experiences of women living with the disease in low- and middle-income contexts, including in Kenya and other countries across sub-Saharan Africa. This study captures the perspectives and recommendations of Kenyan women living with endometriosis through written narratives about the impact of the disease on their daily lives and their journeys through diagnosis and treatment. Thirty-seven women between the ages of 22 and 48 were recruited from an endometriosis support group in Nairobi and Kiambu, Kenya (February-March of 2022) in partnership with the Endo Sisters East Africa Foundation. Narrative data (written anonymous stories submitted through Qualtrics) were analyzed using a deductive thematic analysis methodology. Their stories revealed three themes related to their shared experiences with endometriosis: (1) stigma and disruption to quality of life, (2) barriers to acceptable healthcare, and (3) reliance on self-efficacy and social support to cope with the disease. These findings demonstrate a clear need for improved social awareness of endometriosis in Kenya and the establishment of clear, effective, and supportive pathways, with trained, geographically and financially accessible health care providers, for endometriosis diagnosis and treatment.

Indexed as

EndometriosisAdultFemaleHumansKenyaMiddle AgedQuality of LifeSocial StigmaSocial SupportYoung Adultendometriosismenstrual disorderspelvic pain

Identifiers

PMID36901136
PMCPMC10001793
OpenAlexW4322502358

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read15
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.