Evidence map›Paper›PMID 36900935›Full record

ArticleInternational journal of environmental research and public health2023

Digital Health Literacy and Person-Centred Care: Co-Creation of a Massive Open Online Course for Women with Breast Cancer.

Yolanda Álvarez-Pérez, Andrea Duarte-Díaz, Ana Toledo-Chávarri, Analía Abt-Sacks, Vanesa Ramos-García, Alezandra Torres-Castaño, Amado Rivero-Santana, Lilisbeth Perestelo-Pérez

Registry-linked trialFull text read
In one paragraph

Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06635239 (Massive Open Online Course for Women With Breast Cancer), which is not on this map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06635239 nacompletednot on this map

Massive Open Online Course for Women With Breast Cancer: Development and Evaluation of an Intervention on Person-Centered Care and Digital Health Literacy in Breast Cancer

TypeinterventionalSponsorYolanda Alvarez-PerezRan2020 to 2023Enrolled45ConditionsBreast CancerArmsCo-creation and assessment
3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Review
  2. Factors influencing information overload among breast cancer patients in the information explosion era: a cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Article
  4. Long-term breast cancer survivors: experiences, needs, and proposals for person-centred care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  5. Article
  6. Article
  7. Article
  8. Co-Creation Study Protocol for Developing a Nurse-Led Intervention to Deprescribe Benzodiazepines and Z-Hypnotics in Primary Care Aimed at Empowering Women.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  9. Co-Creation and Validation of a Social Media Resource for Mental Health Literacy Among Spanish Adolescents.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Yolanda Álvarez-PérezCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.ORCID 0000-0002-6414-2863
Andrea Duarte-DíazCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.ORCID 0000-0003-1171-9945
Ana Toledo-ChávarriCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.
Analía Abt-SacksCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.ORCID 0000-0001-7153-8586
Vanesa Ramos-GarcíaCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.ORCID 0000-0002-9106-2420
Alezandra Torres-CastañoCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.ORCID 0000-0003-4690-1421
Amado Rivero-SantanaCanary Islands Health Research Institute Foundation (FIISC), 38109 Tenerife, Spain.ORCID 0000-0002-5067-3196
Lilisbeth Perestelo-PérezNetwork for Research on Chronicity, Primary Care, and Health Promotion (RICAPPS), 38109 Tenerife, Spain.ORCID 0000-0002-6113-7313

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The diagnosis of breast cancer (BC) can make the affected person vulnerable to suffering the possible consequences of the use of low-quality health information. Massive open online courses (MOOCs) may be a useful and efficient resource to improve digital health literacy and person-centred care in this population. The aim of this study is to co-create a MOOC for women with BC, using a modified design approach based on patients' experience. Co-creation was divided into three sequential phases: exploratory, development and evaluation. Seventeen women in any stage of BC and two healthcare professionals participated. In the exploratory phase, a patient journey map was carried out and empowerment needs related to emotional management strategies and self-care guidelines were identified, as well as information needs related to understanding medical terminology. In the development phase, participants designed the structure and contents of the MOOC through a Moodle platform. A MOOC with five units was developed. In the evaluation phase, participants strongly agreed that their participation was useful for the MOOC's development and participating in the co-creation process made the content more relevant to them (experience in the co-creation); most of the participants positively evaluated the content or interface of the MOOC (acceptability pilot). Educational interventions designed by women with BC is a viable strategy to generate higher-quality, useful resources for this population.

Indexed as

Breast NeoplasmsEducation, DistanceHealth LiteracyFemaleHumansPatient-Centered Carebreast cancerdigital health literacyhealth educationMOOCperson-centred care

Identifiers

PMID36900935
PMCPMC10001393

What OpenQuestion holds

Textfull text, public
LicenceCC BY
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Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.