Evidence map›Paper›PMID 36899357›Full record

ArticleBMC palliative care2023

"I can't make all this work." End of life care provision in natural disasters: a qualitative study.

Marguerite Kelly, Imogen Mitchell, Iain Walker, Jane Mears, Brett Scholz

Abstract read
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Marguerite KellySchool of Medicine and Psychology, Australian National University, 54 Mills Road, 2601, Acton, ACT, Australia. marguerite.kelly@anu.edu.au.ORCID http://orcid.org/0000-0001-5571-7189
Imogen MitchellSchool of Medicine and Psychology, Australian National University, 54 Mills Road, 2601, Acton, ACT, Australia.ORCID http://orcid.org/0000-0001-6013-4922
Iain WalkerMelbourne School of Psychological Sciences, The University of Melbourne, Melbourne, VIC, Australia.ORCID http://orcid.org/0000-0002-1020-5873
Jane MearsSchool of Social Sciences, Western Sydney University, NSW, Australia.ORCID http://orcid.org/0000-0002-3923-9727
Brett ScholzSchool of Medicine and Psychology, Australian National University, 54 Mills Road, 2601, Acton, ACT, Australia.ORCID http://orcid.org/0000-0003-2819-994X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundNatural disasters are becoming more frequent and severe and profoundly impact the end-of-life care experience, including service provision. There is a paucity of research examining healthcare workers' experiences in responding to care demands when disasters strike. This research aimed to fill this gap by exploring end-of-life care providers' perceptions of the impact of natural disasters on end-of-life care.

methodsBetween Feb 2021-June 2021 ten in-depth semi-structured interviews were conducted with healthcare professionals providing end-of-life care during recent natural disasters, COVID-19, and/or fires and floods. Interviews were audio-recorded, transcribed, and analysed using a hybrid inductive and deductive thematic approach.

resultsThe overarching theme from the healthcare workers' accounts was of being unable to provide effective compassionate and quality care - "I can't make all this work." They spoke of the considerable burdens the system imposed on them, of being overextended and overwhelmed, having their roles overturned, and losing the human element of care for those at end-of-life.

conclusionThere is urgent need to pioneer effective solutions to minimise the distress of healthcare professionals in delivering end-of-life care in disaster contexts, and to improve the experience of those dying.

Indexed as

COVID-19Hospice CareNatural DisastersTerminal CareHealth PersonnelHumansQualitative ResearchCaregiversEnd of life careEpidemicsHealth personnelLife support careNatural disastersPalliative carePandemicsPatientsQualitative study

Identifiers

PMID36899357
PMCPMC9999053

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.