ArticleHealth expectations : an international journal of public participation in health care and health policy2023
At the intersection of trust and mistrust: A qualitative analysis of motivators and barriers to research participation at a safety-net hospital.
Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 21 citations in OpenAlex.
- Building Trust and Connection: A Family Systems Perspective on Black Veteran Reintegration.Journal of marital and family therapy · 2026Article
- Drivers of Research Participation Among Racially and Ethnically Underrepresented Women: Insights from Semi-Structured Interviews.Journal of racial and ethnic health disparities · 2026Article
- Pretesting Parenting Instruments with Indigenous Fathers and Two-Spirit Parents: A Qualitative Study.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026Article
- Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.Journal of racial and ethnic health disparities · 2026Article
- Strategies for optimizing clinical trial recruitment: perspectives among patients with breast cancer.Cancer causes & control : CCC · 2026Article
- A Mixed Methods Exploration of Emergency Service Use Among Autistic Youth.Journal of autism and developmental disorders · 2026Article
- Variations in interest to participate in health research: Insights from the Florida Statewide Registry for Aging Studies (FSRAS).Journal of medicine, surgery, and public health · 2025Article
- Engaging Historically Excluded Women in Health Research: Addressing Intersectional Barriers to Advance Equitable Recruitment.Journal of racial and ethnic health disparities · 2025Review
- CONNECT Platform to Increase Diverse Engagement and Enrollment in Cardiovascular Clinical Research: Rationale, Design, and Lessons Learned in Early Implementation.Journal of the American Heart Association · 2025Article
- Barriers to recruitment of an observational SARS-CoV-2 emergency department cohort at Boston Medical Center.BMC emergency medicine · 2025Observational
- Barriers and facilitators to conducting human subjects research at a safety net institution from the perspective of researchers.PloS one · 2025Article
- At the intersection of trust and mistrust: A qualitative analysis of motivators and barriers to research participation at a safety-net hospital.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Recruitment and Retention for an Acupuncture Trial in an Underrepresented 65 and Older Population With Chronic Low Back Pain.Global advances in integrative medicine and healthArticle
- Disparities in Access to and Utilization of Surgical Care for Patients with Closed Unstable AO/OTA 44B2 Ankle Fractures and Medicaid.JB & JS open accessArticle
- No one listens to us, we know this, so we participated: Qualitative evidence from menstruation research during the COVID-19 pandemic.Women's health (London, England)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 2 institutions in 2 countries.
Funding
Abstract
introductionThe underrepresentation of Black, Indigenous, and People of Color (BIPOC) individuals in healthcare research limits generalizability and contributes to healthcare inequities. Existing barriers and attitudes toward research participation must be addressed to increase the representation of safety net and other underserved populations.
methodsWe conducted semi-structured qualitative interviews with patients at an urban safety net hospital, focusing on facilitators, barriers, motivators, and preferences for research participation. We conducted direct content analysis guided by an implementation framework and used rapid analysis methods to generate final themes.
resultsWe completed 38 interviews and identified six major themes related to preferences for engagement in research participation: (1) wide variation in research recruitment preferences; (2) logistical complexity negatively impacts willingness to participate; (3) risk contributes to hesitation toward research participation; (4) personal/community benefit, interest in study topic, and compensation serve as motivators for research participation; (5) continued participation despite reported shortcomings of informed consent process; and (6) mistrust could be overcome by relationship or credibility of information sources.
conclusionDespite barriers to participation in research studies among safety-net populations, there are also facilitators that can be implemented to increase knowledge and comprehension, ease of participation, and willingness to join research studies. Study teams should vary recruitment and participation methods to ensure equal access to research opportunities. PATIENT/PUBLIC CONTRIBUTION: Our analysis methods and study progress were presented to individuals within the Boston Medical Center healthcare system. Through this process community engagement specialists, clinical experts, research directors, and others with significant experience working with safety-net populations supported data interpretation and provided recommendations for action following the dissemination of data.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.