ReviewBMC rheumatology2023
Patient and public involvement in research: a review of practical resources for young investigators.
Review in BMC rheumatology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 97 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
97 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient and public involvement in randomized trials of lifestyle intervention among pregnant women with obesity: An umbrella review.International journal of gynaecology and obstetrics: the official organ of the International Federation of Gynaecology and Obstetrics · 2026Pooled it
- Society of American Gastrointestinal and Endoscopic Surgeons guidelines development: patient engagement update to standard operating procedure.Surgical endoscopy · 2025Guideline
- Patient and public involvement in a randomized study: a qualitative study of participants' experiences in a Mediterranean Diet trial.Journal of public health (Oxford, England) · 2025Trial
- Engaging Service Users in Co-Designing a Nurse-Led Weight Talk Tool for Low- and Medium-Secure Mental Health Inpatient Settings: A Participatory Intervention Development Study.International journal of mental health nursing · 2026Article
- Development of a Women's Empowerment Nurse-Led Group Intervention for Benzodiazepine and Z-Hypnotic Deprescription in Primary Healthcare: Results of a Co-Creation Process.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Exploring factors affecting the use of blended diets for children and young people in health, education and social care settings in the UK: The protocol for a realist mixed methods study.Nutrition and health · 2026Article
- Commentary: Making Patient Data Count-Opportunities and Challenges for Open Science in Clinical Psychology.Journal of clinical psychology · 2026Article
- Learning from peer researcher-facilitated surveys: a narrative review on involvement, training and evaluation.Research involvement and engagement · 2026Article
- Co-Producing Training Resources to Improve Healthcare Experiences for Young Women and Reduce Gendered Health Inequalities.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Why involvement remains fragile: a qualitative comparison of principal investigators' and patient organisations' perspectives in Italy.Research involvement and engagement · 2026Article
- Tensions in patient involvement and engagement in health research and development: a qualitative interview study with key actors.Research involvement and engagement · 2026Article
- A global multilingual cocreation of aphasia priority topics through patient and public involvement.Research involvement and engagement · 2026Article
- Patient and Public Involvement (PPI) in lab-based research. What is the added value? Reflections from a researcher and public contributor perspective.Research involvement and engagement · 2026Article
- Developing a culturally relevant bereavement needs assessment tool (CANCOPE-PI) for caregivers of children with cancer in India: a participatory research approach.Research involvement and engagement · 2026Article
- Patients as Partners in Perinatal Health Research: A Scoping Review.BJOG : an international journal of obstetrics and gynaecology · 2026Article
- Evaluating Patient and Public Involvement and Engagement Activity Within the 3DPiPPIn Trial: A Qualitative Exploration of Contributors' Perspectives on Their Impact.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Public and patient involvement: exploring public partnership in pathogen whole-genome sequencing research and its data visualisation.Microbial genomics · 2026Article
- Making space to listen: engaging people with a chronic condition and various health literacy levels as citizen researchers.Research involvement and engagement · 2026Article
- Patient and public involvement in pulmonary embolism research: insights from the development of a pulmonary embolism follow-up care model.Research involvement and engagement · 2026Article
- Co-designing an intergenerational dance programme using the 6SQuID framework: a development and proof-of-concept study.BMJ open · 2026Article
37 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patient and public involvement (PPI) in every aspect of research will add valuable insights from patients' experiences, help to explore barriers and facilitators to their compliance/adherence to assessment and treatment methods, bring meaningful outcomes that could meet their expectations, needs and preferences, reduce health care costs, and improve dissemination of research findings. It is essential to ensure competence of the research team by capacity building with available resources on PPI. This review summarizes practical resources for PPI in various stages of research projects-conception, co-creation, design (including qualitative or mixed methods), execution, implementation, feedback, authorship, acknowledgement and remuneration of patient research partners, and dissemination and communication of research findings with PPI. We have briefly summarized the recommendations and checklists, amongst others, for PPI in rheumatic and musculoskeletal research (e.g. the European Alliance of Associations for Rheumatology (EULAR) recommendations, the Core Outcome Measures in Effectiveness Trials (COMET) checklist and the Guidance for Reporting Involvement of Patients and the Public (GRIPP) checklist). Various tools that could be used to facilitate participation, communication and co-creation of research projects with PPI are highlighted in the review. We shed light on the opportunities and challenges for young investigators involving PPI in their research projects, and have summarized various resources that could be used to enhance PPI in various phases/aspects of research. A summary of web links to various tools and resources for PPI in various stages of research is provided in Additional file 1.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.