Evidence map›Paper›PMID 36894819›Full record

ArticleJournal of general internal medicine2023

"We've Got to Bring Information to Where People Are Comfortable": Community-Based Advance Care Planning with the Black Community.

Sarah Nouri, Mara Quinn, Brittney N Doyle, Mac McKissack, Natalya Johnson, Molly Wertz, Charissa Tan, Steven Z Pantilat, Courtney R Lyles, Christine S Ritchie and 1 more

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of general internal medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
4.1field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 14 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 5 institutions in 1 country.

Sarah NouriDivision of Palliative Medicine, Department of Medicine, University of California San Francisco, San Francisco, CA, USA. sarah.nouri@ucsf.edu.ORCID 0000-0001-7163-0366
Mara QuinnDivision of Palliative Medicine, Department of Medicine, University of California San Francisco, San Francisco, CA, USA.
Brittney N DoyleWISE Health, San Francisco, CA, USA.
Mac McKissackTheKey, San Francisco, CA, USA.
Natalya JohnsonDivision of Palliative Medicine, Department of Medicine, University of California San Francisco, San Francisco, CA, USA.
Molly WertzMolly Wertz Consulting, San Francisco, CA, USA.
Charissa TanJohn A. Burns School of Medicine, University of Hawai'I at Mānoa, Honolulu, HI, USA.
Steven Z PantilatDivision of Palliative Medicine, Department of Medicine, University of California San Francisco, San Francisco, CA, USA.
Courtney R LylesDivision of General Internal Medicine, Department of Medicine, Zuckerberg San Francisco General Hospital, San Francisco, CA, USA.
Christine S RitchieDivision of Palliative Care and Geriatric Medicine, Department of Medicine, Massachusetts General Hospital and Harvard Medical School, Boston, MA, USA.
Rebecca L SudoreDivision of Geriatrics, Department of Medicine, University of California San Francisco, San Francisco, USA.
University of California, San Francisco · USHarvard University · USSan Francisco General Hospital · USSurveyMonkey (United States) · USUniversity of Hawaiʻi at Mānoa · US

Funding

Translational Research Core - Health Engagement & Action Translational (HEAT)P30DK092924 · NIDDK · KAISER FOUNDATION RESEARCH INSTITUTE · PI Alyce Sophia Adams, HILARY Kessler SELIGMAN · 2011 to 2026
$9.2M
UCLA Summer Research Training in Aging for Medical Stud*T35AG026736 · NIA · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI Cathy Lee, John C Newman · 2005 to 2026
$3.0M
Mentoring Researchers in Advance Care Planning for Underrepresented Older Adults at Risk for Alzheimer’s Disease and Related Dementias and Their CaregiversK24AG054415 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI REBECCA L SUDORE · 2017 to 2026
$1.7M
Taking Advance Care Planning (ACP) to Diverse Older Adult Communities: Facilitators, Barriers, and Development of a Novel ACP ToolkitR03AG073989 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI NOURI, SARAH · 2021 to 2022
$323k
NIA NIH HHS K24 AG054415NIA NIH HHS R03 AG073989NIA NIH HHS R03AG073989NIA NIH HHS T35 AG026736NIDDK NIH HHS P30 DK092924
6 · The paper itself

Abstract

backgroundPeople identifying as Black/African American are less likely to engage in advance care planning (ACP) compared to their White peers, despite the association of ACP with improved patient and caregiver outcomes.

objectivesAssess facilitators/barriers to ACP in the San Francisco (SF) Black community and co-design/implement/test community-based ACP pilot events.

designCommunity-based participatory research, including qualitative research, intervention development, and implementation.

participantsIn partnership with the SF Palliative Care Workgroup (which includes health system, city, and community-based organizations), we formed an African American Advisory Committee (n = 13). We conducted 6 focus groups with Black older adults (age ≥ 55), caregivers, and community leaders (n = 29). The Advisory Committee then selected 5 community-based organizations through a widespread request for proposal. These community-based organizations designed and implemented community-based pilot events to support ACP engagement. MAIN MEASURES: Two authors analyzed recorded focus group transcripts using thematic analysis. We assessed pre- vs post-event readiness to engage in ACP (validated ACP Engagement Survey; 1-4 scale, 4 = most ready) using Wilcoxon signed rank tests and assessed event acceptability with open-ended questions. KEY

resultsThemes included the importance of ACP to the Black community (sub-themes: strengthens families; preserves dignity, particularly for sexual/gender minorities; is tied to financial planning) and facilitators for increasing ACP engagement (sub-themes: culturally relevant materials; events in trusted community spaces including Black-owned businesses). A total of 114 participants attended 5 events; 74% identified as Black, and 16% as sexual/gender minorities. Readiness to engage in ACP was similar pre- vs post-events; 98% would recommend the events to others.

conclusionsCommunity-based ACP events designed and led by and for the Black community are highly acceptable. Novel insights underscored the importance of financial planning as part of ACP and the role of Black-owned businesses as trusted spaces for ACP-related discussions.

Indexed as

Advance Care PlanningAgedBlack or African AmericanFocus GroupsHumansMiddle AgedPalliative CareQualitative ResearchAdvance care planningAfrican AmericansCommunity-based participatory researchHealth equitySexual and gender minorities

Identifiers

PMID36894819
PMCPMC9998020
OpenAlexW4323655965

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.