Evidence map›Paper›PMID 36892929›Full record

ArticleJournal of participatory medicine2023

Enhancing Exposure Treatment for Youths With Chronic Pain: Co-design and Qualitative Approach.

Lea Schemer, Courtney W Hess, Amanda R Van Orden, Kathryn A Birnie, Lauren E Harrison, Julia A Glombiewski, Laura E Simons

2 registry-linked trialsFull text read
In one paragraph

Article in Journal of participatory medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01974791 nacompletednot on this map

GET Living: Graded Exposure Treatment for Children and Adolescents With Chronic Pain

TypeinterventionalSponsorBoston Children's HospitalRan2013 to 2018Enrolled34ConditionsChronic Pain, Neuralgia, Musculoskeletal Pain, HeadacheArmsGET Living
NCT03699007 nacompletednot on this map

GET Living: Graded Exposure Treatment for Children and Adolescents With Chronic Pain

TypeinterventionalSponsorLaura E SimonsRan2019 to 2022Enrolled68ConditionsPediatric Pain, Chronic Pain, Widespread, Musculoskeletal PainArmsGraded Exposure Therapy (GET Living), Multidisciplinary Pain Management (MPM)
3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Lea SchemerDepartment of Clinical Psychology and Psychotherapy, University of Kaiserslautern-Landau, Landau, Germany.ORCID https://orcid.org/0000-0001-7830-4889
Courtney W HessDepartment of Anesthesiology, Perioperative, and Pain Medicine, Stanford University School of Medicine, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0001-5207-7411
Amanda R Van OrdenDepartment of Anesthesiology, Perioperative, and Pain Medicine, Stanford University School of Medicine, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0003-1899-6224
Kathryn A BirnieDepartment of Anesthesiology, Perioperative, and Pain Medicine, Department of Community Health Sciences, Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, Canada.ORCID https://orcid.org/0000-0002-8223-8834
Lauren E HarrisonDepartment of Anesthesiology, Perioperative, and Pain Medicine, Stanford University School of Medicine, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0002-2113-6471
Julia A GlombiewskiDepartment of Clinical Psychology and Psychotherapy, University of Kaiserslautern-Landau, Landau, Germany.ORCID https://orcid.org/0000-0001-8037-398X
Laura E SimonsDepartment of Anesthesiology, Perioperative, and Pain Medicine, Stanford University School of Medicine, Palo Alto, CA, United States.ORCID https://orcid.org/0000-0002-3395-9483

Funding

Mentoring and Research in Biobehavioral Aspects of Pediatric PainK24AR078945 · NIAMS · STANFORD UNIVERSITY · PI LAURA E SIMONS · 2022 to 2026
$970k
Get moving, GET living: Graded exposure treatment for adolescents with chronic musculoskeletal pain.R21AR072921 · NIAMS · STANFORD UNIVERSITY · PI SIMONS, LAURA E · 2018 to 2020
$553k
NIAMS NIH HHS K24 AR078945NIAMS NIH HHS R21 AR072921
6 · The paper itself

Abstract

backgroundIncreasing the access to and improving the impact of pain treatments is of utmost importance, especially among youths with chronic pain. The engagement of patients as research partners (in contrast to research participants) provides valuable expertise to collaboratively improve treatment delivery.

objectiveThis study looked at a multidisciplinary exposure treatment for youths with chronic pain through the lens of patients and caregivers with the aim to explore and validate treatment change processes, prioritize and develop ideas for improvement, and identify particularly helpful treatment elements.

methodsQualitative exit interviews were conducted with patients and caregivers at their discharge from 2 clinical trials (ClinicalTrials.gov NCT01974791 and NCT03699007). Six independent co-design meetings were held with patients and caregivers as research partners to establish a consensus within and between groups. The results were validated in a wrap-up meeting.

resultsPatients and caregivers described that exposure treatment helped them better process pain-related emotions, feel empowered, and improve their relationship with each other. The research partners developed and agreed upon 12 ideas for improvement. Major recommendations include that pain exposure treatment should be disseminated more not only among patients and caregivers but also among primary care providers and the general public to facilitate an early referral for treatment. Exposure treatment should allow flexibility in terms of duration, frequency, and delivery mode. The research partners prioritized 13 helpful treatment elements. Most of the research partners agreed that future exposure treatments should continue to empower patients to choose meaningful exposure activities, break long-term goals into smaller steps, and discuss realistic expectations at discharge.

conclusionsThe results of this study have the potential to contribute to the refinement of pain treatments more broadly. At their core, they suggest that pain treatments should be disseminated more, flexible, and transparent.

Indexed as

caregiversco-designexposure treatmentpainparticipatory designqualitative analysisyouths with chronic pain

Identifiers

PMID36892929
PMCPMC10037174

What OpenQuestion holds

Textfull text, public
LicenceCC BY
measurements read20
identifiers read3
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.