Evidence map›Paper›PMID 36892594›Full record

ArticleJournal of pediatric psychology2023

Does Diagnostic Certainty Matter?: Pain-Related Stigma in Adolescents with Juvenile Idiopathic Arthritis.

Emily O Wakefield, Vaishali Belamkar, Ashley Sandoval, Rebecca M Puhl, Barbara Edelheit, William T Zempsky, Hannah A Rodrigues, Mark D Litt

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pediatric psychology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
4.1field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
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  5. Article
4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

8 authors at 4 institutions in 1 country.

Emily O WakefieldDivisions of Pain and Palliative Medicine and Pediatric Psychology, Connecticut Children's Medical Center, Hartford, CT.ORCID 0000-0002-9308-6557
Vaishali BelamkarDepartment of Research, Connecticut Children's Medical Center, Hartford, CT.
Ashley SandovalDepartment of Psychological Science, Central Connecticut State University, New Britain, CT.
Rebecca M PuhlRudd Center for Food Policy & Obesity, University of Connecticut, Hartford, CT.
Barbara EdelheitDepartment of Pediatrics, University of Connecticut School of Medicine, Farmington, CT.
William T ZempskyDepartment of Pediatrics, University of Connecticut School of Medicine, Farmington, CT.
Hannah A RodriguesDepartment of Psychological Science, Central Connecticut State University, New Britain, CT.
Mark D LittDivision of Behavioral Sciences and Community Health, University of Connecticut Health Center, Farmington, CT.ORCID 0000-0002-8319-6090
University of Connecticut · USCentral Connecticut State University · USConnecticut Children's Medical Center · USUConn Health · US

Funding

The Impact of Social Rejection: Investigating Pain-related Stigma in Adolescents with Chronic Widespread Musculoskeletal PainK23AR073934 · NIAMS · CONNECTICUT CHILDREN'S MEDICAL CENTER · PI WAKEFIELD, EMILY O · 2020 to 2024
$792k
NIAMS NIH HHS K23 AR073934
6 · The paper itself

Abstract

objectivesChildhood chronic pain conditions are common and vulnerable to stigma. Adolescents with chronic primary pain experience diagnostic uncertainty and describe pain-related stigma experiences across multiple social contexts. Juvenile idiopathic arthritis (JIA) is a childhood autoimmune, inflammatory condition with associated chronic pain, but with well-defined diagnostic criteria. The current study examined pain-related stigma experiences in adolescents with JIA.

methodsFour focus groups of 3-7 adolescents with JIA (N = 16), ages 12-17 (Mage = 15.42, SD = 1.82), and parents (N = 13) were conducted to examine experiences of, and reaction to, pain-related stigma. Patients were recruited from an outpatient pediatric rheumatology clinic. Focus group length ranged from 28 to 99 minutes long. Two coders used directed content analysis resulting in 82.17% inter-rater level of agreement.

resultsAdolescents with JIA described pain-related stigma experiences predominantly from school teachers and peers, and less from medical providers (e.g., school nurses), and family members after a diagnosis. The primary categories that emerged were (1) Felt Stigma, (2) Internalized Stigma, (3) Anticipatory Stigma/Concealment, and (4) Contributions to Pain-Related Stigma. A common experience of pain-related stigma was the perception by others that the adolescent was too young to have arthritis.

conclusionsIn common with adolescents with unexplained chronic pain, our findings indicate that adolescents with JIA experience pain-related stigma in certain social contexts. Diagnostic certainty may contribute to greater support among medical providers and within families. Future research should investigate the impact of pain-related stigma across childhood pain conditions.

Indexed as

Arthritis, JuvenileChronic PainAdolescentChildEmotionsFocus GroupsHumansQuality of Lifeadolescentschronic and recurrent painjuvenile arthritisqualitative methods

Identifiers

PMID36892594
PMCPMC10118850
OpenAlexW4323653772

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.