Evidence map›Paper›PMID 36883408›Full record

ArticleThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics2022

An Examination of the Ethical and Legal Limits in Implementing "Traceback Testing" for Deceased Patients.

Jessica Martucci, Yolanda Prado, Alan F Rope, Sheila Weinmann, Larissa White, Jamilyn Zepp, Nora B Henrikson, Heather Spencer Feigelson, Jessica Ezzell Hunter, Sandra Soo-Jin Lee

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In one paragraph

Article in The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Jessica MartucciHISTORY AND SOCIOLOGY OF SCIENCE DEPARTMENT, UNIVERSITY OF PENNSYLVANIA, PHILADELPHIA, USA.
Yolanda PradoDEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
Alan F RopeCENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST; PORTLAND, OR AND GENOME MEDICAL; SOUTH SAN FRANCISCO, CA, USA.
Sheila WeinmannDEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
Larissa WhiteINSTITUTE FOR HEALTH RESEARCH, KAISER PERMANENTE, DENVERCO, USA.
Jamilyn ZeppDEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
Nora B HenriksonKAISER PERMANENTE WASHINGTON HEALTH RESEARCH INSTITUTE, SEATTLEWA, USA.
Heather Spencer FeigelsonINSTITUTE FOR HEALTH RESEARCH, KAISER PERMANENTE, DENVERCO, USA.
Jessica Ezzell HunterDEPARTMENT OF TRANSLATIONAL AND APPLIED GENOMICS, CENTER FOR HEALTH RESEARCH, KAISER PERMANENTE NORTHWEST, PORTLAND, OR, USA.
Sandra Soo-Jin LeeDIVISION OF ETHICS, DEPARTMENT OF MEDICAL HUMANITIES AND ETHICS, COLUMBIA UNIVERSITY, NEW YORK, NY, USA.

Funding

Leveraging tumor registries and pathology specimens to facilitate genetic testing and traceback for ovarian cancerU01CA244323 · NCI · KAISER FOUNDATION RESEARCH INSTITUTE · PI HUNTER, JESSICA EZZELL · 2020 to 2023
$2.7M
NCI NIH HHS U01 CA244323
6 · The paper itself

Abstract

This paper examines the legal and ethical aspects of traceback testing, a process in which patients who have been previously diagnosed with ovarian cancer are identified and offered genetic testing so that their family members can be informed of their genetic risk and can also choose to undergo testing. Specifically, this analysis examines the ethical and legal limits in implementing traceback testing in cases when the patient is deceased and can no longer consent to genetic testing.

Indexed as

FamilyGenetic TestingHumansPatientsBRCA1/BRCA2Cancer SyndromesCascade ScreeningHereditary Breast and Ovarian CancerReturn of ResultsTraceback Testing

Identifiers

PMID36883408
PMCPMC10009393

What OpenQuestion holds

Textfull text, public
LicenceCC BY
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measurements read4
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.