ArticleAge and ageing2023
The impact of the mySupport advance care planning intervention on family caregivers' perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries.
Article in Age and ageing, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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15 citing papers in PubMed, 29 citations in OpenAlex.
- Assessing Decision-Making Tools for Meaningful Discussions About Transfer Decisions From Long-Term Care to Hospital: A Scoping Review.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Article
- Promoting Family/Friend Involvement in Care Planning in Care Homes: A Qualitative Exploration of the Usefulness and Relevance of an Information Resource.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Understanding the family caregivers' needs in late-stage dementia: a qualitative perspective to inform policy action.BMC geriatrics · 2026Article
- Investigating Person-Centred Care Planning in Care Homes Across England: An Exploratory Study of Practices and Contextual Factors.Journal of advanced nursing · 2026Article
- Developing a Set of Key Principles for Care Planning Within Older Adult Care Homes: A Modified Delphi Survey.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Developing a set of key principles for care planning within older adult care homes: study protocol for a modified Delphi survey.BMJ open · 2025Article
- Quality indicators and patient outcome measures for palliative care in cancer patients: a systematic review.Ecancermedicalscience · 2025Review
- "Help with rowing the boat": Implementing and evaluating the Strengthening a Palliative Approach in Long-Term Care program in four Canadian provinces.Palliative care and social practice · 2025Article
- Motivations of family advisors in engaging in research to improve a palliative approach to care for persons living with dementia: an interpretive descriptive study.Research involvement and engagement · 2024Article
- Implementation of an Advance Care Planning Intervention in Nursing Homes: An International Multiple Case Study.The Gerontologist · 2024Article
- Validating care and treatment scenarios for measuring decisional conflict regarding future care preferences among older adults.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Preference for primary care in Chinese homebound patients.BMC public health · 2024Article
- Consensus definition of advance care planning in dementia: A 33-country Delphi study.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- A Parallel Process of Staff-Family Distress in Long-Term Care: A Challenge to Collaboration.SAGE open nursingArticle
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Authors and funding
13 authors at 8 institutions in 5 countries.
Funding
Abstract
backgroundthe mySupport advance care planning intervention was originally developed and evaluated in Northern Ireland (UK). Family caregivers of nursing home residents with dementia received an educational booklet and a family care conference with a trained facilitator to discuss their relative's future care.
objectivesto investigate whether upscaling the intervention adapted to local context and complemented by a question prompt list impacts family caregivers' uncertainty in decision-making and their satisfaction with care across six countries. Second, to investigate whether mySupport affects residents' hospitalisations and documented advance decisions.
designa pretest-posttest design.
settingin Canada, the Czech Republic, Ireland, Italy, the Netherlands and the UK, two nursing homes participated.
participantsin total, 88 family caregivers completed baseline, intervention and follow-up assessments.
methodsfamily caregivers' scores on the Decisional Conflict Scale and Family Perceptions of Care Scale before and after the intervention were compared with linear mixed models. The number of documented advance decisions and residents' hospitalisations was obtained via chart review or reported by nursing home staff and compared between baseline and follow-up with McNemar tests.
resultsfamily caregivers reported less decision-making uncertainty (-9.6, 95% confidence interval: -13.3, -6.0, P < 0.001) and more positive perceptions of care (+11.4, 95% confidence interval: 7.8, 15.0; P < 0.001) after the intervention. The number of advance decisions to refuse treatment was significantly higher after the intervention (21 vs 16); the number of other advance decisions or hospitalisations was unchanged.
conclusionsthe mySupport intervention may be impactful in countries beyond the original setting.
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