ReviewNPJ digital medicine2023
Health data justice: building new norms for health data governance.
Review in NPJ digital medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Strategies to reach, involve, and maintain underserved populations in health intervention research: a systematic review of reviews.International journal for equity in health · 2026Pooled it
- Maternal and neonatal outcomes of second-generation mothers in Europe: a systematic review.Globalization and health · 2025Pooled it
- Reclaiming informed consent to train mental health AI with patient data.NPJ digital medicine · 2026Article
- At the Crossroads of Data Justice and Data Capitalism: How Generative AI in Healthcare Mobilises Its Assemblages.Sociology of health & illness · 2026Article
- Innovations, implementation, and challenges of mobile health: a narrative review.Frontiers in public health · 2026Review
- Moving beyond the empty cell: The threat of decontextualized healthcare data.PLOS digital health · 2026Review
- Health data sovereignty: pinpointing conceptual ambiguities.Frontiers in digital health · 2026Article
- Cultivating an equity-oriented data sharing culture for African health research initiatives.Nature communications · 2025Article
- Challenges to and Countermeasures for the Value Realization of Healthcare Data Elements in China.Health care science · 2025Article
- Climate Change and Respiratory Health: Opportunities to Contribute to Environmental Justice: An Official American Thoracic Society Workshop Report.Annals of the American Thoracic Society · 2025Article
- Responsible artificial intelligence in healthcare: a systematic review on the use of ethical principles in the development and deployment of artificial intelligence.BMJ digital health & AI · 2025Article
- Unconventional data, unprecedented insights: leveraging non-traditional data during a pandemic.Frontiers in public health · 2024Article
- A digital health governance agenda for sexual and reproductive health and rights.Sexual and reproductive health matters · 2023Article
- Integration of migrant and refugee data in health information systems in Europe: advancing evidence, policy and practice.The Lancet regional health. Europe · 2023Review
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
The retention and use of health-related data by government, corporate, and health professional actors risk exacerbating the harms of colonial systems of inequality in which health care and public health are situated, regardless of the intentions about how those data are used. In this context, a data justice perspective presents opportunities to develop new norms of health-related data governance that hold health justice as the primary objective. In this perspective, we define the concept of health data justice, outline urgent issues informed by this approach, and propose five calls to action from a health data justice perspective.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.