Evidence map›Paper›PMID 36853314›Full record

ArticleAsian Pacific journal of cancer prevention : APJCP2023

Reflections from Women with an Interval Breast Cancer Diagnosis: A Qualitative Analysis of Open Disclosure in the BreastScreen Western Australia Program.

Lily Claringbold, Meagan E Brennan, Helen Lund, Sonia El-Zaemey, Nehmat Houssami, Elizabeth Wylie

Open access · goldAbstract read
In one paragraph

Article in Asian Pacific journal of cancer prevention : APJCP, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
1.4field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 6 citations in OpenAlex.

  1. Pooled it
  2. Patient and Family Perspectives on Statutory Duty of Candour Following Serious Adverse Patient Safety Events.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Lily ClaringboldNational School of Medicine, The University of Notre Dame Australia, Sydney, NSW, Australia.
Meagan E BrennanNational School of Medicine, The University of Notre Dame Australia, Sydney, NSW, Australia.ORCID 0000-0002-3281-7643
Helen LundBreast Screen Western Australia, Women and Newborn Health Service, Perth, WA, Australia.
Sonia El-ZaemeyBreast Screen Western Australia, Women and Newborn Health Service, Perth, WA, Australia.
Nehmat HoussamiSydney School of Public Health, Faculty of Medicine and Health, The University of Sydney, NSW and The Daffodil Centre, the University of Sydney, a joint venture with Cancer Council NSW, Australia.
Elizabeth WylieBreast Screen Western Australia, Women and Newborn Health Service, Perth, WA, Australia.
BreastScreen WA · AUThe University of Notre Dame Australia · AUCancer Council NSW · AUThe University of Western Australia · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

background'Interval breast cancer' describes a malignancy that is diagnosed after a negative screening mammogram. Open disclosure is a process of addressing a negative health outcome that includes an apology and an opportunity for the client to discuss concerns. BreastScreen Western Australia has implemented a policy of open disclosure. The purpose of this study was to gain an understanding of clients' experience with interval cancer and their attitude towards the screening programme by conducting a thematic analysis of written responses from women participating in the open disclosure process.

methodsWomen experiencing an interval cancer diagnosis between 2011 and 2020 were sent a questionnaire by mail. It included two broad questions with free-text responses. A qualitative analysis of the responses was conducted using an inductive approach. Responses were de-identified and data were thematically analysed and presented using verbatim quotations.

resultsFive themes emerged in response to "what could we have done better?": 'nothing,' 'broaden scope,' 'service delivery,' 'breast density education' and 'more education' generally. Six themes emerged in response to "what did we do well?": 'staffing,' 'overall satisfaction,' 'reminders,' 'follow-up after interval cancer,' 'efficiency' and 'information and education provision.' An additional theme of 'storytelling' emerged from both questions: an opportunity for the woman to share her experience of cancer.

conclusionMost women expressed positive attitudes towards the service and appreciated giving feedback in the open disclosure process. Several themes supporting the role of BreastScreen in education were identified, including providing information about breast density, breast health, and limitations of screening.

Indexed as

Breast NeoplasmsBreastBreast DensityDisclosureFemaleHumansWestern AustraliaBreast NeoplasmsDisclosuremammographymass screening

Identifiers

PMID36853314
PMCPMC10162615
OpenAlexW4322617473

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.