ArticleBMJ open2023
Piloting of a minimum data set for older people living in care homes in England: protocol for a longitudinal, mixed-methods study.
Article in BMJ open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed.
- Internationally studied parameters related to the COVID-19 pandemic in nursing homes: a scoping review.Systematic reviews · 2026Article
- Traversing the data landscape: insights and recommendations from a case study using novel linkage of care home and health data.BMJ health & care informatics · 2026Article
- Nursing Minimum Datasets in Long-Term Care Settings: Scoping Review.Journal of medical Internet research · 2025Article
- Use of the adult social care outcomes toolkit (ASCOT) in research studies: an international scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Piloting a minimum data set (MDS) in english care homes: a qualitative study of professional perspectives on implementation and data use.BMC geriatrics · 2025Article
- Construct validity of measures of care home resident quality of life: cross-sectional analysis using data from a pilot minimum data set in England.Health and quality of life outcomes · 2025Article
- Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- Piloting a minimum data set for older people living in care homes in England: a developmental study.Age and ageing · 2025Article
- Article
- Exploring subjective quality-of-life indicators in long-term care facilities: a mixed-methods research protocol.BMJ open · 2024Article
- Exploratory factor analysis and Rasch analysis to assess the structural validity of the Adult Social Care Outcomes Toolkit Proxy version (ASCOT-Proxy) completed by care home staff.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Article
- New horizons in the role of digital data in the healthcare of older people.Age and ageing · 2023Article
Corrections and comments
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Authors and funding
17 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionHealth and care data are routinely collected about care home residents in England, yet there is no way to collate these data to inform benchmarking and improvement. The Developing research resources And minimum data set for Care Homes' Adoption and use study has developed a prototype minimum data set (MDS) for piloting. METHODS AND ANALYSIS: A mixed-methods longitudinal pilot study will be conducted in 60 care homes (approximately 960 residents) in 3 regions of England, using resident data from cloud-based digital care home records at two-time points. These will be linked to resident and care home level data held within routine National Health Service and social care data sets. Two rounds of focus groups with care home staff (n=8-10 per region) and additional interviews with external stakeholders (n=3 per region) will explore implementation and the perceived utility of the MDS. Data will be assessed for completeness and timeliness of completion. Descriptive statistics, including percentage floor and ceiling effects, will establish data quality. For validated scales, construct validity will be assessed by hypothesis testing and exploratory factor analysis will establish structural validity. Internal consistency will be established using Cronbach's alpha. Longitudinal analysis of the pilot data will demonstrate the value of the MDS to each region. Qualitative data will be analysed inductively using thematic analysis to understand the complexities of implementing an MDS in care homes for older people. ETHICS AND DISSEMINATION: The study has received ethical approval from the London Queen's Square Research Ethics Committee (22/LO/0250). Informed consent is required for participation. Findings will be disseminated to: academics working on data use and integration in social care, care sector organisations, policy makers and commissioners. Findings will be published in peer-reviewed journals. Partner NIHR Applied Research Collaborations, the National Care Forum and the British Geriatrics Society will disseminate policy briefs.
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