Evidence map›Paper›PMID 36846975›Full record

ArticleCancer medicine2023

Understanding hope at diagnosis: A study among Guatemalan parents of children with cancer.

Anneliese H Williams, Silvia Rivas, Lucia Fuentes, Ana Cáceres-Serrano, Gia Ferrara, Tegan Reeves, Federico Antillon-Klussmann, Carlos Rodriguez-Galindo, Jennifer W Mack, Dylan E Graetz

Abstract read
In one paragraph

Article in Cancer medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Anneliese H WilliamsPurdue University, West Lafayette, Indiana, USA.ORCID 0000-0001-5907-9989
Silvia RivasUnidad Nacional de Oncología Pediátrica, Guatemala City, Guatemala.
Lucia FuentesUnidad Nacional de Oncología Pediátrica, Guatemala City, Guatemala.
Ana Cáceres-SerranoUnidad Nacional de Oncología Pediátrica, Guatemala City, Guatemala.
Gia FerraraSt. Jude Children's Research Hospital, Memphis, Tennessee, USA.ORCID 0000-0002-3435-8436
Tegan ReevesSt. Jude Children's Research Hospital, Memphis, Tennessee, USA.
Federico Antillon-KlussmannUnidad Nacional de Oncología Pediátrica, Guatemala City, Guatemala.
Carlos Rodriguez-GalindoSt. Jude Children's Research Hospital, Memphis, Tennessee, USA.
Jennifer W MackDana Farber Cancer Institute/Boston Children's Hospital, Boston, Massachusetts, USA.ORCID 0000-0001-5791-4178
Dylan E GraetzSt. Jude Children's Research Hospital, Memphis, Tennessee, USA.ORCID 0000-0002-4541-6910

Funding

PROFESSIONAL ONCOLOGY EDUCATION PROGRAMR25CA023944 · NCI · ST. JUDE CHILDREN'S RESEARCH HOSPITAL · PI SUZANNE A. GRONEMEYER · 1986 to 2026
$8.3M
NCI NIH HHS R25 CA023944
6 · The paper itself

Abstract

backgroundIn high-income countries, hope facilitates parental coping and builds the clinical relationship between families of children with cancer and their clinicians. However, the manifestation of hope in low- and middle-income countries (LMICs) remains poorly understood. Our study explores Guatemalan parents' experiences with hope during the pediatric oncology diagnostic process and aims to identify discrete actions clinicians take to support hope.

methodsThis qualitative study utilized audio-recordings of the diagnostic process and an additional semi-structured interview for 20 families of children with cancer at Unidad Nacional de Oncología Pediátrica in Guatemala. Spanish audio-recordings were translated into English, transcribed, and coded using a priori and novel codes. Thematic content analysis using constant comparative methods explored parents' hopes and concerns.

resultsAt diagnosis, Guatemalan parents expressed both hopes and concerns related to the entire cancer continuum. Throughout the diagnostic process, hope grew as concerns were alleviated. Clinicians supported hope by creating a supportive environment, providing information, affirming religious beliefs, and empowering parents. These strategies helped parents shift their focus from fear and uncertainty toward hope for their child's future. Parents expressed that establishing hope improved mood, promoted acceptance, and enabled them to care for themselves and their children.

conclusionThese results confirm the relevance of supporting hope in pediatric oncology settings in LMICs and suggest that culture informs hope-related needs. Supporting hope is critical across cultures and can be integrated into clinical conversation using the four processes identified by our results.

Indexed as

NeoplasmsParentsChildCommunicationFearHumansMedical Oncologyclinical cancer researchpediatric cancerprognosispsychosocial studies

Identifiers

PMID36846975
PMCPMC10166945

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