Evidence map›Paper›PMID 36845576›Full record

ArticleCurrent developmental disorders reports2023

Programs to Prepare Siblings for Future Roles to Support Their Brother or Sister with a Neurodevelopmental Disability: a Scoping Review.

Linda Nguyen, Jael Bootsma, Marjolijn Ketelaar, Briano Di Rezze, Susan M Jack, Jan Willem Gorter

Abstract readScoping Review
In one paragraph

Article in Current developmental disorders reports, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Linda NguyenSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON Canada.ORCID 0000-0002-7165-6678
Jael BootsmaSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON Canada.ORCID 0000-0002-7862-0109
Marjolijn KetelaarCanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON Canada.ORCID 0000-0002-8324-518X
Briano Di RezzeSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON Canada.ORCID 0000-0002-6061-2506
Susan M JackSchool of Nursing, Faculty of Health Sciences, McMaster University, Hamilton, ON Canada.ORCID 0000-0003-4380-620X
Jan Willem GorterSchool of Rehabilitation Science, Faculty of Health Sciences, McMaster University, Hamilton, ON Canada.ORCID 0000-0002-3012-2119

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Purpose of Review: To identify and map the characteristics and outcomes of programs designed to prepare siblings for their future roles with their sibling with a neurodevelopmental disability. Recent Findings: Existing programs to support siblings of individuals with a neurodevelopmental disability often focus on providing information about neurodevelopmental disabilities, creating a community for siblings to connect with each other, and connecting siblings to resources and services to support them in their roles. Some programs are offered to the whole family with specific sessions for siblings. While these program descriptions are provided in the literature, there is limited understanding about the impacts and outcomes of these programs on siblings of an individual with a neurodevelopmental disability. Summary: Fifty-eight articles (published between 1975 and 2020, with > 50% published since 2010) met the inclusion criteria, representing 54 sibling programs from 11 countries. Extracted data represented 1033 (553 females) sibling participants, between 4 and 67 years old. Twenty-seven programs focused on the outcome of knowledge acquisition for the siblings and thirty-one programs focused on the outcome of empowerment for the siblings to teach skills to their sibling with a neurodevelopmental disability. While there is an increasing number of programs for siblings of individuals with a neurodevelopmental disability in the past decade, there is a lack of siblings as co-developers or facilitators. Future research should consider the various roles that siblings can have in programs to address their needs. Supplementary Information: The online version contains supplementary material available at 10.1007/s40474-023-00272-w.

Indexed as

ChildrenDisabilityProgramSiblingsYouth

Identifiers

PMID36845576
PMCPMC9942034

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.