ReviewJournal of clinical and translational science2023
Barriers to and solutions for representative inclusion across the lifespan and in life course research: The need for structural competency highlighted by the COVID-19 pandemic.
Review in Journal of clinical and translational science, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed.
- Effectiveness of Spices and Herbs in Improving Diet Quality Among Underserved Populations.Nutrition reviews · 2026Article
- A Multiregional Decentralized Clinical Trial Program to Improve Access.JAMA network open · 2026Article
- Article
- Ethical Issues in Rural Health Research: A Scoping Review.Journal of bioethical inquiry · 2026Article
- Adapting a Smartphone-Based Auricular Point Acupressure Self-Management Program for Rural Chronic Musculoskeletal Pain: Qualitative Study.Health services insights · 2026Article
- Uncovering systemic barriers related to equity, diversity and inclusion in child health research: a scoping review addressing marginalised communities.BMJ global health · 2025Article
- Applying Mixed Methods to Enhance Health Equity in Research on Dementia and Cognitive Impairment.Journal of aging and health · 2025Article
- Decentralized subject recruitment for a prospective community surveillance system: The influence of social determinants of health on inclusion of minorities in research.Journal of clinical and translational science · 2025Article
- Use of telehealth for measurement of anthropometrics in toddlers and their parents.Frontiers in digital health · 2025Article
- "How Fluent Do I Need to Be to Say I'm Fluent?" Research Experiences of Communities that Speak Languages Other than English.Community health equity research & policy · 2025Article
- Rural Health Disparities in Allergy, Asthma, and Immunologic Diseases: The Current State and Future Direction for Clinical Care and Research.The journal of allergy and clinical immunology. In practice · 2024Review
- Article
- Transportation, childcare, lodging, and meals: Key for participant engagement and inclusion of historically underrepresented populations in the healthy brain and child development birth cohort.Journal of clinical and translational science · 2024Article
- Exploring biorepository donation patterns, experiences, and recommendations: a mixed-methods study among Appalachian adults enrolled in a sugary drink reduction program.Frontiers in public health · 2024Article
- What are the key pediatric public policy priorities as the COVID-19 pandemic persists?Pediatric research · 2023Article
- Addressing health disparities in the criminal legal system: Translational benefits, challenges, and facilitators of impactful research with incarcerated pregnant women.Journal of clinical and translational science · 2023Article
- Laying the groundwork to make diversity, equity, and inclusion front and center in clinical and translational research.Journal of clinical and translational science · 2023Article
- Barriers and facilitators to recruitment of underrepresented research participants: Perspectives of clinical research coordinators.Journal of clinical and translational science · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
21 authors.
Funding
Abstract
Exclusion of special populations (older adults; pregnant women, children, and adolescents; individuals of lower socioeconomic status and/or who live in rural communities; people from racial and ethnic minority groups; individuals from sexual or gender minority groups; and individuals with disabilities) in research is a pervasive problem, despite efforts and policy changes by the National Institutes of Health and other organizations. These populations are adversely impacted by social determinants of health (SDOH) that reduce access and ability to participate in biomedical research. In March 2020, the Northwestern University Clinical and Translational Sciences Institute hosted the "Lifespan and Life Course Research: integrating strategies" "Un-Meeting" to discuss barriers and solutions to underrepresentation of special populations in biomedical research. The COVID-19 pandemic highlighted how exclusion of representative populations in research can increase health inequities. We applied findings of this meeting to perform a literature review of barriers and solutions to recruitment and retention of representative populations in research and to discuss how findings are important to research conducted during the ongoing COVID-19 pandemic. We highlight the role of SDOH, review barriers and solutions to underrepresentation, and discuss the importance of a structural competency framework to improve research participation and retention among special populations.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.