Evidence map›Paper›PMID 36832511›Full record

ArticleChildren (Basel, Switzerland)2023

Family Caregiver Acceptability of Assessing Caregiver Adverse Childhood Experiences (ACEs) and Distress in Pediatric Specialty Care.

Theresa L Kapke, Jeffrey Karst, Brynn LiaBraaten, Jian Zhang, Ke Yan, Jody Barbeau, Keri R Hainsworth

Open access · goldAbstract read
In one paragraph

Article in Children (Basel, Switzerland), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
1.9field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 6 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Theresa L KapkeDepartment of Anesthesiology, Medical College of Wisconsin, Milwaukee, WI 53226, USA.ORCID 0000-0001-6168-0423
Jeffrey KarstDivision of Pediatric Psychology & Developmental Medicine, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI 53226, USA.
Brynn LiaBraatenDepartment of Anesthesiology, Medical College of Wisconsin, Milwaukee, WI 53226, USA.
Jian ZhangDivision of Quantitative Health Sciences, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI 53226, USA.
Ke YanDivision of Quantitative Health Sciences, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI 53226, USA.ORCID 0000-0001-6599-4622
Jody BarbeauDivision of Quantitative Health Sciences, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI 53226, USA.
Keri R HainsworthDepartment of Anesthesiology, Medical College of Wisconsin, Milwaukee, WI 53226, USA.ORCID 0000-0002-1203-0157
Medical College of Wisconsin · US

Funding

Midwest Athletes Against Childhood Cancer (MACC Fund) and the Pediatric Pain Research Fund at the Medical College of WI and Children's WI NA
6 · The paper itself

Abstract

introductionProviding quality healthcare for children includes assessing and responding to needs of their family caregivers. Three salient domains to consider are caregivers' early adverse childhood experiences (ACEs), their current levels of distress, and their resilience in coping with both prior and current stressors.

objectiveDetermine acceptability of assessing caregiver ACEs, current distress, and resilience in pediatric subspecialty care settings.

methodsCaregivers of patients in two pediatric specialty care clinics completed questionnaires about their ACEs, recent emotional distress, and resilience. Importantly, caregivers also rated the acceptability of being asked these questions. Participants included 100 caregivers of youth ages 3-17 across Sickle Cell Disease and Pain clinic settings. The majority of participants were mothers (91.0%) who identified as non-Hispanic (86.0%). Caregiver race was primarily African American/Black (53.0%) and White (41.0%). The Area Deprivation Index (ADI) was used to assess socioeconomic disadvantage.

resultsHigh levels of caregiver acceptability or neutrality with assessing ACEs and distress, as well as high ACEs, distress, and resilience. Associations were found between caregiver ratings of acceptability with caregiver resilience and socioeconomic disadvantage. Caregivers reported openness to being asked about their experiences during childhood and recent emotional distress, although ratings of acceptability varied according to other contextual variables, such as level of socioeconomic disadvantage and caregiver resilience. In general, caregivers perceived themselves to be resilient in the face of adversity.

conclusionsAssessing caregiver ACEs and distress in a trauma-informed way may provide opportunities for better understanding the needs of caregivers and families in order to support them more effectively in the pediatric setting.

Indexed as

ACEscaregiver wellbeingpediatricsresilience

Identifiers

PMID36832511
PMCPMC9954957
OpenAlexW4320917995

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.