Evidence map›Paper›PMID 36827624›Full record

ArticleJournal of clinical oncology : official journal of the American Society of Clinical Oncology2023

Cost of Cancer in Adolescents and Young Adults in the United States: Results of the 2021 Report by Deloitte Access Economics, Commissioned by Teen Cancer America.

Susan K Parsons, Theresa H M Keegan, Anne C Kirchhoff, Helen M Parsons, K Robin Yabroff, Simon J Davies

Registry-linked trialAbstract read
In one paragraph

Article in Journal of clinical oncology : official journal of the American Society of Clinical Oncology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06296641 (Leveraging COmmunity Partnered nEeds Navigation to Reduce Unmet Health-related Social Needs Among Caregivers for Adolescent and Younger Adult Cancer Survivors), which is not on this map. Cited by 29 papers.

0numbers the graph read from it
0cells of the map it votes in
29citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06296641 naenrolling by invitationnot on this mapstarted 2024, after this paper: background citation

Leveraging COmmunity Partnered nEeds Navigation to Reduce Unmet Health-related Social Needs Among Caregivers for Adolescent and Younger Adult Cancer Survivors

TypeinterventionalSponsorColumbia UniversityRan2024 to 2026Enrolled60ConditionsCancer in AdolescenceArmsNeeds navigation intervention
3 · Its place in the literature

Who cites it

29 citing papers in PubMed.

  1. Article
  2. Sociodemographic disparities and reasons for delayed healthcare among U.S. cancer survivors: an All of Us study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  3. Trends in emotional distress among childhood, adolescent, and young adult (CAYA) cancer survivors: A decade-long study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  4. Article
  5. Management of late toxicities and specific follow-up needs of adolescent and young adult cancer survivors: recommendations from scientific societies in Spain.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2026
    Review
  6. Article
  7. Article
  8. Article
  9. Article
  10. Review
  11. Journal of adolescent and young adult oncology · 2025
    Article
  12. Article
  13. GoFundMe®: Crowdfunding Among Young Adult Patients With Cancer.Clinical journal of oncology nursing · 2025
    Article
  14. Review
  15. Article
  16. Medicine availability and affordability for paediatric cancers, China.Bulletin of the World Health Organization · 2025
    Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Susan K ParsonsDivisions of Hematology/Oncology and Clinical Care Research, Tufts Medical Center, Tufts University School of Medicine, Boston, MA.ORCID 0000-0003-0282-6490
Theresa H M KeeganCenter for Oncology Hematology Outcomes Research and Training and Division of Hematology and Oncology, University of California Davis School of Medicine, Sacramento, CA.ORCID 0000-0002-1961-4008
Anne C KirchhoffHuntsman Cancer Institute and University of Utah, School of Medicine, Salt Lake City, UT.ORCID 0000-0002-0747-9179
Helen M ParsonsDivision of Health Policy and Management, University of Minnesota, Minneapolis, MN.
K Robin YabroffScientific Vice President, Health Services Research, American Cancer Society, Inc.ORCID 0000-0003-0644-5572
Simon J DaviesExecutive Director, Teen Cancer America, Los Angeles, CA.ORCID 0000-0002-8496-7571

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe purpose of this report, commissioned by Teen Cancer America and performed by Deloitte Access Economics in 2021, was to estimate the total costs incurred by adolescent and young adults (AYAs) after cancer diagnosis in the United States (US) over their life course.

methodsThe incidence of cancer in 2019 among AYAs age 15-39 years was estimated from the US Cancer Statistics Public Use Database, and relative survival was projected from the Surveillance, Epidemiology, and End Results Program. Cost domains included health system, productivity, and well-being costs. Components were estimated with published literature and pooled data from the Medical Expenditure Panel Survey from 2008 to 2012 and inflated to 2019 dollars.

resultsThe economic and human costs of cancer in AYAs are substantial-$23.5 billion overall, corresponding to $259,324 per person over the lifetime. The majority of costs are borne by AYA cancer survivors themselves in the form of lost productivity, loss of well-being, and loss of life.

conclusionThese findings underscore the need to address the burden of cancer in AYAs through targeted programs for AYAs, such as financial navigation and health insurance literacy interventions, as well as local and national policy initiatives to address access to and enhanced coverage for clinical trials participation, fertility services, and survivorship care.

Indexed as

Insurance, HealthNeoplasmsAdolescentAdultEfficiencyHumansUnited StatesYoung Adult

Identifiers

PMID36827624
PMCPMC10256335

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.