Evidence map›Paper›PMID 36827237›Full record

ArticlePloS one2023

Impact of the "Looking after my health after cancer" peer-led active patient education program on cancer survivors and their caregivers: A qualitative study.

Ainhoa Ulibarri-Ochoa, Sheila Sánchez-Gómez, Estíbaliz Gamboa-Moreno, Irene Duo-Trecet, Lucia Garate-Echenique, Begoña Belarra-Tellechea, Lourdes Ochoa de Retana-García

Open access · goldAbstract read
In one paragraph

Article in PloS one, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.5field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 2 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 5 institutions in 1 country.

Ainhoa Ulibarri-OchoaBioaraba Health Research Institute, Clinical Nursing and Community Health Research Group, Vitoria-Gasteiz, Spain.ORCID 0000-0001-9599-0542
Sheila Sánchez-GómezBioaraba Health Research Institute, Healthcare Research Group, Vitoria-Gasteiz, Spain.
Estíbaliz Gamboa-MorenoBiodonostia Health Research Institute, Primary Care Research Unit, San Sebastián-Donostia, Spain.
Irene Duo-TrecetBiodonostia Health Research Institute, Primary Care Research Unit, San Sebastián-Donostia, Spain.
Lucia Garate-EcheniqueOsakidetza Basque Health Service, Coordination of Strategic Plans, Subdirectorate for Nursing, Vitoria-Gasteiz, Spain.
Begoña Belarra-TellecheaBiocruces Bizkaia Health Research Institute, Barakaldo, Spain.
Lourdes Ochoa de Retana-GarcíaBiodonostia Health Research Institute, Primary Care Research Unit, San Sebastián-Donostia, Spain.
Basque Government · ESBioCruces Health research Institute · ESBiogipuzkoa Health Research Institute · ESOsakidetza · ESUniversity of the Basque Country · ES

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundCancer survival has doubled and is likely to continue increasing in the near future. Cancer survivors experience long-term adverse effects, with associated psychological changes, and often they have needs that are yet to be met. Recognizing the lack of continuity-of-care initiatives for cancer survivors and caregivers, Osakidetza Basque Health Service has started to implement through primary care a peer-led active patient education program called "Looking after my health after cancer". This study explores how cancer survivors and their caregivers rate the experience of participating in the program, to what extent the program helps them understand and address their unmet felt needs, and helps them improve their activation for self-care and self-management.

methodsA qualitative exploratory phenomenological study was conducted using five focus groups: four with cancer survivors (n = 29) and caregivers (n = 2), and one with peer leaders (n = 7). Narrative content analysis was performed using the constant comparison method, facilitated by Atlas-ti software. Descriptive analysis of sociodemographic and clinical data was performed. The study was developed according to the Consolidated criteria for reporting qualitative research (COREQ) checklist.

resultsFive main themes emerged from the content analysis: 1) satisfaction with the program as a positive learning experience; 2) peer sharing and learning ("if they can, so can I"); 3) fears prior to attending the program; 4) becoming more aware of unmet felt needs and feeling understood in the "new normal"; and 5) a more positive view of their experience, helping them become active in self-care and empowered in the self-management of their condition.

conclusionsThe peer education program has shown to have a positive impact on cancer survivors and caregivers. It is necessary to design, implement and evaluate interventions of this type to address unmet felt needs during cancer survivorship and improve their quality of life.

Indexed as

Cancer SurvivorsNeoplasmsCaregiversHumansPatient Education as TopicQualitative ResearchQuality of Life

Identifiers

PMID36827237
PMCPMC9955581
OpenAlexW4321748916

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.