Evidence map›Paper›PMID 36821041›Full record

ArticleJournal of cancer survivorship : research and practice2024

"You don't accept he's completely ok": a reflexive thematic analysis of parents' roles in monitoring their child's health and symptoms after finishing childhood cancer treatment.

Nele Loecher, Abbie Jordan, Sheri L Spunt, Pamela Simon, Laura E Simons, Gary Dahl, Kristin Kosyluk, Lauren C Heathcote

Open access · greenAbstract read
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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
2.9field-weighted citation impact, top 10% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 5 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 2 countries.

Nele LoecherDepartment of Mental Health Law and Policy, University of South Florida, 13301 Bruce B Downs Blvd, Tampa, FL, 33613, USA. nloecher@usf.edu.
Abbie JordanDepartment of Psychology & Centre for Pain Research, University of Bath, Bath, UK.
Sheri L SpuntDepartment of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA.
Pamela SimonLucile Packard Children's Hospital at Stanford, Palo Alto, CA, USA.
Laura E SimonsDepartment of Anesthesiology, Perioperative, and Pain Medicine, Stanford University School of Medicine, Stanford, CA, USA.
Gary DahlDepartment of Pediatrics, Stanford University School of Medicine, Stanford, CA, USA.
Kristin KosylukDepartment of Mental Health Law and Policy, University of South Florida, 13301 Bruce B Downs Blvd, Tampa, FL, 33613, USA.
Lauren C HeathcoteHealth Psychology Section, Institute of Psychiatry Psychology and Neuroscience, King's College London, London, UK.
Stanford University · USUniversity of South Florida · USKing's College London · GBLucile Packard Children's Hospital · USUniversity of Bath · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectives/purposeChildhood cancer survival brings continued mental and physical health challenges both for the child and for the family. In this study, we investigated how parents viewed their roles in their child's health and symptom monitoring during the survivorship period.

methodsTwenty-one parents of childhood cancer survivors (n = 18 mothers; parent mage = 49.78 years, child mage = 18.50 years; range = 12-25 years), whose children were at least one year off-treatment (m = 3.67 years; SD = 2.25; various diagnoses), completed semi-structured interviews. Interviews were recorded, transcribed, and analyzed using reflexive thematic analysis.

resultsAnalyses generated three themes which reflect roles that parents may adopt in the context of monitoring symptoms in their childhood cancer survivor. "Vigilant Mama and Papa" (theme 1) described parents who expressed a strong sense of responsibility for protecting their child's health during survivorship resulting in careful monitoring of their child's symptoms and health. "Pragmatic Mamas and Papas" (theme 2) described parents who adopted an approach to symptom and health monitoring that emphasized moving past cancer and focusing on the future. Finally, "Encouraging Mamas and Papas" (theme 3) described parents who focused on educating and preparing their child to develop an autonomous approach to health and symptom self-monitoring as they transitioned to survivorship and adulthood.

conclusionParents take on varying roles in monitoring their child's symptoms and health after finishing childhood cancer treatment. IMPLICATIONS FOR CANCER SURVIVORS: Understanding the ways in which parents continue to be involved in their child's cancer journey helps researchers develop interventions to support dyadic coping in survivorship.

Indexed as

Cancer SurvivorsNeoplasmsParentsAdaptation, PsychologicalAdolescentAdultChildChild HealthChild, PreschoolFemaleHumansMaleMiddle AgedParent-Child RelationsQualitative ResearchYoung AdultAdolescents and young adultChildhood cancerParent perspectivesSurvivorship

Identifiers

PMID36821041
OpenAlexW4321600257

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.