Evidence map›Paper›PMID 36808389›Full record

ArticleJournal of cancer survivorship : research and practice2024

Barriers and facilitators to implementation of the interoperable Survivorship Passport (SurPass) v2.0 in 6 European countries: a PanCareSurPass online survey study.

Selina R van den Oever, Ismay A E de Beijer, Leontien C M Kremer, Marie Alfes, Julia Balaguer, Edit Bardi, Adela Cañete Nieto, Giorgio Cangioli, Eliana Charalambous, Catherine Chronaki and 24 more

Open access · greenAbstract read
PubMed Publisher
In one paragraph

Article in Journal of cancer survivorship : research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
4.6field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

34 authors at 18 institutions in 7 countries.

Selina R van den OeverPrincess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands. s.r.vandenoever-2@prinsesmaximacentrum.nl.
Ismay A E de BeijerPrincess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands.
Leontien C M KremerPrincess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands.
Marie AlfesCCI Europe, Vienna, Austria.
Julia BalaguerHospital Universitario y Politécnico La Fe, Valencia, Spain.
Edit BardiSt. Anna Children's Hospital, Vienna, Austria.
Adela Cañete NietoHospital Universitario y Politécnico La Fe, Valencia, Spain.
Giorgio CangioliHL7 Europe, Brussels, Belgium.
Eliana CharalambousHL7 Europe, Brussels, Belgium.
Catherine ChronakiHL7 Europe, Brussels, Belgium.
Tiago CostaCCI Europe, Vienna, Austria.
Alexander DegelseggerGesundheit Österreich GMBH, Vienna, Austria.
Vanessa DüsterSt. Anna Children's Cancer Research Institute, Vienna, Austria.
Anna-Liesa FilbertUniversity Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany.
Desiree GrabowUniversity Medical Center of the Johannes Gutenberg University Mainz, Mainz, Germany.
Gerald GredingerGesundheit Österreich GMBH, Vienna, Austria.
Hannah GsellCCI Europe, Vienna, Austria.
Riccardo HauptIRCCS Istituto Giannina Gaslini, Genova, Italy.
Maria van HelvoirtUniversity Hospitals Leuven, KU, Louvain, Belgium.
Ruth LadensteinSt. Anna Children's Hospital, Vienna, Austria.
Thorsten LangerUniversitatsklinikum Schleswig-Holstein, Campus Lubeck, Lubeck, Germany.
Anja LaschkolnigGesundheit Österreich GMBH, Vienna, Austria.
Monica MuracaIRCCS Istituto Giannina Gaslini, Genova, Italy.
Jelena RasconVilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
Günter SchreierAIT Austrian Institute of Technology, Graz, Austria.
Zuzana TomasikovaCCI Europe, Vienna, Austria.
Maria Teresa TormoInstituto Investigación Sanitaria La Fe, Valencia, Spain.
Justas TrinkunasVilnius University Hospital Santaros Klinikos, Vilnius, Lithuania.
Jessica TrollipPrincess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands.
Kathrin TrunnerGesundheit Österreich GMBH, Vienna, Austria.
Anne UyttebroeckUniversitatsklinikum Schleswig-Holstein, Campus Lubeck, Lubeck, Germany.
Helena J H van der PalPrincess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands.
Saskia M F PluijmPrincess Máxima Center for Pediatric Oncology, Heidelberglaan 25, 3584 CS, Utrecht, The Netherlands.
PanCareSurPass consortium
Princess Máxima Center · NLGesundheit Österreich · ATHealth Level Seven International · BEHospital Universitari i Politècnic La Fe · ESVilnius University Hospital Santariskiu Klinikos · LTIstituto Giannina Gaslini · ITJohannes Gutenberg University Mainz · DEAustrian Institute of Technology · ATInstituto de Investigación Sanitaria La Fe · ESJohannes Kepler University of Linz · ATKU Leuven · BESt. Anna Children's Cancer Research InstituteSt Anna Children's Hospital · ATUniversity Hospital Schleswig-Holstein · DEUniversity of Lübeck · DEIstituti di Ricovero e Cura a Carattere Scientifico · ITUniversity Medical Center of the Johannes Gutenberg University Mainz · DEWilhelmina Children's Hospital · NL

Funding

Horizon 2020 899999
6 · The paper itself

Abstract

purposeLong-term follow-up (LTFU) care for childhood cancer survivors (CCSs) is essential to improve and maintain their quality of life. The Survivorship Passport (SurPass) is a digital tool which can aid in the delivery of adequate LTFU care. During the European PanCareSurPass (PCSP) project, the SurPass v2.0 will be implemented and evaluated at six LTFU care clinics in Austria, Belgium, Germany, Italy, Lithuania and Spain. We aimed to identify barriers and facilitators to the implementation of the SurPass v2.0 with regard to the care process as well as ethical, legal, social and economical aspects.

methodsAn online, semi-structured survey was distributed to 75 stakeholders (LTFU care providers, LTFU care program managers and CCSs) affiliated with one of the six centres. Barriers and facilitators identified in four centres or more were defined as main contextual factors influencing implementation of SurPass v2.0.

resultsFifty-four barriers and 50 facilitators were identified. Among the main barriers were a lack of time and (financial) resources, gaps in knowledge concerning ethical and legal issues and a potential increase in health-related anxiety in CCSs upon receiving a SurPass. Main facilitators included institutions' access to electronic medical records, as well as previous experience with SurPass or similar tools.

conclusionsWe provided an overview of contextual factors that may influence SurPass implementation. Solutions should be found to overcome barriers and ensure effective implementation of SurPass v2.0 into routine clinical care. IMPLICATIONS FOR CANCER SURVIVORS: These findings will be used to inform on an implementation strategy tailored for the six centres.

Indexed as

Cancer SurvivorsSurvivorshipEuropeFemaleHumansMaleNeoplasmsQuality of LifeSurveys and QuestionnairesAftercareCancer survivorsCare planLong-term follow-up carePaediatric oncologySurPassSurvivorshipSurvivorship Passport

Identifiers

PMID36808389
OpenAlexW4321478295

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.