Evidence map›Paper›PMID 36807478›Full record

ArticleAmerican journal on intellectual and developmental disabilities2023

Improving Retention of Diverse Samples in Longitudinal Research on Developmental Disabilities.

Jieun Song, Robert S Dembo, Leann Smith DaWalt, Carol D Ryff, Marsha R Mailick

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in American journal on intellectual and developmental disabilities, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
1.6field-weighted citation impact, top 19% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 5 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Jieun SongJieun Song, Robert S. Dembo, Leann Smith DaWalt, Carol D. Ryff, and Marsha R. Mailick, University of Wisconsin-Madison. Marsha R. Mailick, PhD, made an equal contribution.
Robert S DemboJieun Song, Robert S. Dembo, Leann Smith DaWalt, Carol D. Ryff, and Marsha R. Mailick, University of Wisconsin-Madison. Marsha R. Mailick, PhD, made an equal contribution.
Leann Smith DaWaltJieun Song, Robert S. Dembo, Leann Smith DaWalt, Carol D. Ryff, and Marsha R. Mailick, University of Wisconsin-Madison. Marsha R. Mailick, PhD, made an equal contribution.
Carol D RyffJieun Song, Robert S. Dembo, Leann Smith DaWalt, Carol D. Ryff, and Marsha R. Mailick, University of Wisconsin-Madison. Marsha R. Mailick, PhD, made an equal contribution.
Marsha R MailickJieun Song, Robert S. Dembo, Leann Smith DaWalt, Carol D. Ryff, and Marsha R. Mailick, University of Wisconsin-Madison. Marsha R. Mailick, PhD, made an equal contribution.

Funding

U19 MIDlife in the United States-Diversity Supplement-WellsU19AG051426 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI CAROL D. RYFF · 2016 to 2026
$74.8M
STATISTICS COREP01AG020166 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI RYFF, CAROL D. · 2002 to 2015
$50.6M
Integrative Pathways to Cognitive, Affective, and Brain HealthU01AG077928 · NIA · UNIVERSITY OF WISCONSIN-MADISON · PI Sterling C Johnson, MARGIE E LACHMAN · 2022 to 2026
$17.7M
POSTDOCTORAL TRAINING IN MENTAL RETARDATION RESEARCHT32HD007489 · NICHD · UNIVERSITY OF WISCONSIN-MADISON · PI Sigan L Hartley · 1995 to 2026
$6.0M
Waisman Intellectual and Developmental Disabilities Research Center Down Syndrome RegistryU54HD090256 · NICHD · UNIVERSITY OF WISCONSIN-MADISON · PI CHANG, QIANG · 2016 to 2020
$6.0M
NIA NIH HHS P01 AG020166NIA NIH HHS U01 AG077928NIA NIH HHS U19 AG051426NICHD NIH HHS T32 HD007489NICHD NIH HHS U54 HD090256
6 · The paper itself

Abstract

Developmental disabilities (DD) research has depended on volunteer and clinical samples, with limited racial/ethnic diversity. This study focused on improving diversity and retention in DD research. The sample included 225 parents with a child with DD and 4,002 parents without children with DD from diverse racial/ethnic groups, drawn from Midlife in the United States, a national longitudinal study. Unexpectedly, parents of children with DD from diverse racial/ethnic groups were more likely to participate longitudinally than other groups. Relative participant payment was a factor that enhanced their likelihood of retention. This research illustrates how large national studies can be leveraged to increase representativeness and ongoing participation of diverse racial/ethnic groups, especially in combination with other factors, such as parenting a child with DD.

Indexed as

Developmental DisabilitiesParentsChildHumansLongitudinal StudiesParentingUnited Statesdevelopmental disabilities researchdiversityretention in longitudinal research

Identifiers

PMID36807478
PMCPMC10008512
OpenAlexW4321370322

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.