ArticleDementia (London, England)2023
Shared decision-making in persons living with dementia: A scoping review.
Article in Dementia (London, England), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 49 citations in OpenAlex.
- Factors associated with participation in advance care planning among people with different degrees of cognitive impairment: a systematic review.BMC palliative care · 2026Pooled it
- Ethical dilemmas in the care of patients with Alzheimer's disease and related dementias unable to give informed consent: positioning Lebanon within the Global North-South context.BMC medical ethics · 2025Pooled it
- Talking Mats and self-perceived involvement for service recipients with dementia in Swedish home care services: a randomized controlled trial.BMC geriatrics · 2026Trial
- Clinician Considerations Regarding Surgical Decision-Making in the Context of Dementia.JAMA surgery · 2026Article
- Ignoring the Older Person's Voice: Dignity, Ageism, and Epistemic Injustice in Geriatric Nursing Practice-A Nursing-Oriented Conceptual Review and Practice Framework.Healthcare (Basel, Switzerland) · 2026Review
- ["No shows" in dementia diagnostics: qualitative perspectives of patients and caregivers after a positive case finding by general practitioners].Zeitschrift fur Gerontologie und Geriatrie · 2026Article
- Understanding the Dementia Care Triad: Findings From a Longitudinal Qualitative Study With People Living With Dementia, Their Carers, and Their Healthcare Professionals.Dementia (London, England) · 2026Article
- Assessing communication in people with dementia : A scoping review of existing tools.Zeitschrift fur Gerontologie und Geriatrie · 2026Review
- Modified Decisional Conflict Scale for Primary Caregivers in Long-Term Care Facilities: Psychometric Validation Using Structural Equation Modeling.Healthcare (Basel, Switzerland) · 2026Article
- Nurse Practitioners' Experiences Navigating Treatment Decision-Making Affecting Older People with Neurocognitive Disorders and Cancer.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2026Article
- Ethical Considerations in Promoting Physical Activity for Nursing Home Residents With Cognitive Impairment: Implications for Policy and Practice.Journal of gerontological nursing · 2026Article
- Communicating the risk of psychiatric in-patient or enhanced community care in dementia.BJPsych open · 2026Article
- The neural basis of prosocial effort-based decision making in older adults at risk for Alzheimer's disease.medRxiv : the preprint server for health sciences · 2026Article
- Patient Preferences for Dementia Interventions: A Scoping Review With a Systematic Review of Medications and Choice-Based Methods.Journal of the American Geriatrics Society · 2026Article
- Family interventions in dementia mental health environments (FIND ME): a mixed-methods protocol.BMJ open · 2026Article
- Factors in Patient-Clinician Interactions That Influence the Decision-Making Process of Older Patients with Dementia.JMA journal · 2026Article
- Role transition in comorbidity management: a qualitative study of dementia home care trajectories.BMC nursing · 2025Article
- [Barriers in the care pathway of dementia diagnostics: framework analysis of the "iCreate" project].Zeitschrift fur Gerontologie und Geriatrie · 2025Article
- Usability and feasibility of ADappt: a digital toolkit to support communication on diagnosis and prognosis in memory clinics.Alzheimer's research & therapy · 2025Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
Evidence supports that older adults with cognitive impairment can reliably communicate their values and choices, even as cognition may decline. Shared decision-making, including the patient, family members, and healthcare providers, is critical to patient-centered care. The aim of this scoping review was to synthesize what is known about shared decision-making in persons living with dementia. A scoping review was completed in PubMed, CINAHL, and Web of Science. Keywords included content areas of dementia and shared decision-making. Inclusion criteria were as follows: description of shared or cooperative decision making, cognitively impaired patient population, adult patient, and original research. Review articles were excluded, as well as those for which the formal healthcare provider was the only team member involved in the decision-making (e.g., physician), and/or the patient sample was not cognitively impaired. Systematically extracted data were organized in a table, compared, and synthesized. The search yielded 263 non-duplicate articles that were screened by title and abstract. Ninety-three articles remained, and the full text was reviewed; 32 articles were eligible for this review. Studies were from across Europe (
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.