ArticleInternational journal of qualitative studies on health and well-being2023
What happens when people develop dementia whilst working? An exploratory multiple case study.
Article in International journal of qualitative studies on health and well-being, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Potential of the Job Demands and Accommodation Planning Tool for Individuals Working With Mild Cognitive Impairment or Dementia.Dementia (London, England) · 2026Article
- Employment Experiences of People Living with Young-Onset Dementia: Perspectives from Workers, Care Partners, and Employment Specialists in Taiwan.Journal of occupational rehabilitation · 2026Article
- Transitions: Living With Young-Onset Alzheimer's Disease: A Qualitative Interview Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- 'Too young to sit at home': a qualitative study conducted among employees with young-onset dementia and their relatives.Aging & mental health · 2024Article
- What happens if your colleague was the first person to notice that you have young-onset dementia?Geriatrics & gerontology international · 2024Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThis study is an in-depth exploration of the unfolding experiences of five persons who developed dementia while still in paid work/employment, and of their significant others. Namely, we explore how they experienced the actions and decisions taken with respect to work, and what the consequences meant to them.
methodsA qualitative longitudinal case study design with multiple cases was used, including five participants with dementia and significant others of their choice. Interviews were undertaken longitudinally and analysed with the Formal Data-Structure Analysis approach.
resultsThe joint analysis resulted in two intertwined themes: 1) The significance and consequences of a dementia diagnosis: a double-edged trigger, and 2) Sensemaking and agency. The prevalent images of what dementia is, who can/cannot get it and what it will bring, were revealed as the critical aspects. Having the opportunity to make sense of what has happened and participate in decision-making, contributed decisively to the participants' experiences.
conclusionsFindings illustrate how a dementia diagnosis is alien in work-life, but once diagnosed, it may trigger self-fulfiling expectations based upon stereotypical understanding of dementia. A shift is needed from a deficit-focused perspective, to viewing people with dementia as citizens capable of agency.
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