ArticleThe Gerontologist2024
"I Lay Awake at Night": Latino Family Caregivers' Experiences Covering Out-of-Pocket Costs When Caring for Someone Living With Dementia.
Article in The Gerontologist, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Expanding the Catalog of Patient and Caregiver Out-of-Pocket Costs: A Systematic Literature Review.Population health management · 2024Pooled it
- The Impact of Spousal Caregiving on Financial Well-Being: An Analysis of Subjective Financial Strain.Western journal of nursing research · 2026Article
- Financial strain contributes to daily depressive and anxiety symptoms in Hispanic and Latino family caregivers of people living with dementia: A daily diary study.Alzheimer's & dementia. Behavior & socioeconomics of aging · 2026Article
- The Price of Care: Trends in Financial Transfers to Aging Parents.Journal of the American Medical Directors Association · 2026Article
- Use of Personal and Social Resourcefulness by Adult-Child and Spousal Caregivers of Persons with Dementia.International journal of aging & human development · 2026Article
- Health-Related Consequences of Financial Strain Among Family Caregivers in the U.S.Research on aging · 2026Article
- AI-enhanced culturally tailored intervention for Latino family caregivers of persons living with dementia: a feasibility study.The Gerontologist · 2026Article
- Latino Caregiver Experiences With Dementia Care and Healthcare Navigation.Journal of the American Geriatrics Society · 2025Article
- Understanding how social context shapes decisions to seek institutional care: a qualitative study of experiences of progressive cognitive decline among Latinx families.The Gerontologist · 2025Article
- "It may cost you your money, it costs you your life": a framework for financial hardship in dementia.The Gerontologist · 2025Article
- Equitable formal care access: examining processes for Hispanic/Latino family dementia caregivers' decision-making.The Gerontologist · 2025Article
- Acceptability of a Web-Based Financial Education Intervention for Latino Caregivers: Mixed Methods Evaluation.JMIR formative research · 2025Article
- Lessons from a Pilot Study of a Culturally Tailored Financial Well-Being Intervention Among Latino Family Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Experiences and Supportive Care Needs of Latinx Millennial Caregivers.Journal of transcultural nursing : official journal of the Transcultural Nursing Society · 2024Article
- The Depression Anxiety Stress Scale 8: investigating its cutoff scores in relevance to loneliness and burnout among dementia family caregivers.Scientific reports · 2024Article
- Use of Caregiving Support Services Among Diverse Dementia Caregivers by Geographic Context.The Gerontologist · 2024Article
- Cuidando Juntos: A Culturally Adapted Psychoeducation Program for Latino Dementia Caregivers.Clinical gerontologistArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
BACKGROUND AND
objectivesThe financial burden of caregiving has received less research attention than physical and emotional costs. This is especially true for underserved ethnic minorities. Financial strain affects mental and physical health and is unequally distributed across caregivers of different races and ethnicities. Although caregivers overall spend, on average, one quarter of their income on caregiving, Latino caregivers, the focus of this study, spend nearly half. RESEARCH DESIGN AND
methodsTo better understand this disparity, we conducted 11 qualitative interviews with 14 Latino caregivers of persons living with dementia located in either California or Texas. Interview transcripts were thematically coded, guided by a material-psychosocial-behavioral conceptual model of financial strain.
resultsWe identified 3 themes: daily needs and costs, psychological distress caused by financial issues, and stressful barriers to accessing family and societal support. Furthermore, interviews revealed how Latino culture may influence spending patterns and management of costs. Findings suggest that preference by Latino families to care for a family member in the home may be met with a financial disadvantage due to the high out-of-pocket costs of care. DISCUSSION AND IMPLICATIONS: A better understanding of the factors contributing to high costs for Latino caregivers and how these costs affect caregivers will inform approaches at both the individual and policy levels and develop culturally relevant interventions to help Latino families to lower caregiving costs. This is especially important as the number of Latinos living with dementia is expected to increase over the next 4 decades and effective interventions are lacking.
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Registered trials
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