Evidence map›Paper›PMID 36778076›Full record

ReviewLancet regional health. Americas2022

No person left behind: Mapping the health policy landscape for genomics research in the Caribbean.

Jyothsna Bolleddula, Donald Simeon, Simon G Anderson, Lester Shields, Jasneth Mullings, Pilar Ossorio, Averell Bethelmey, Anna Kasafi Perkins

Abstract readReview
In one paragraph

Review in Lancet regional health. Americas, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
  4. Article
  5. Review
  6. Opportunities for promoting open data in the Caribbean through biobanks.Revista panamericana de salud publica = Pan American journal of public health · 2025
    Article
  7. SHARE: An ethical framework for equitable data sharing in Caribbean health research.Revista panamericana de salud publica = Pan American journal of public health · 2024
    Article
  8. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jyothsna BolleddulaCornell University, Ithaca, NY, USA.
Donald SimeonThe University of the West Indies, St Augustine, Trinidad and Tobago.
Simon G AndersonGlasgow Caribbean Centre for Development Research, The University of the West Indies, Cave Hill, Barbados.
Lester ShieldsThe University of the West Indies, Mona, Jamaica.
Jasneth MullingsThe University of the West Indies, Mona, Jamaica.
Pilar OssorioUniversity of Wisconsin, Madison, WI, USA.
Averell BethelmeyThe University of the West Indies, St Augustine, Trinidad and Tobago.
Anna Kasafi PerkinsThe University of the West Indies, Regional Headquarters, Jamaica.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The Caribbean has long been an under-represented geographical region in the field of genomics research. Such under-representation may result in Caribbean people being underserved by precision medicine and other public health benefits of genomics. A collaboration among regional and international researchers aims to address this issue through the H3ECaribbean project (Human Heredity, Environment, and Health in the Caribbean), which builds on the lessons and success of H3Africa. The Caribbean project aims to target issues of social justice by encouraging the inclusion of diverse Caribbean communities in genomics research. This paper explores a framework for the ethical and socially acceptable conduct of genomics research in the Caribbean, taking account of the cultural peculiarities of the region. This is done in part by exploring research ethics issues identified in indigenous communities in North America, Small Island Developing States, and similar endeavours from the African continent. The framework provides guidance for interacting with local community leaders, as well as detailing steps for obtaining informed consent of all participants. Specifically, the authors outline the methods to ensure effective interaction and enforce full transparency with study participants to combat historical neglect when working with under-represented communities in the Caribbean.

Indexed as

CaribbeanELSIEthicalGenomicsH3ECaribbeanHealth policyLegalSocial

Identifiers

PMID36778076
PMCPMC9904062

What OpenQuestion holds

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LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.