Evidence map›Paper›PMID 36767297›Full record

ArticleInternational journal of environmental research and public health2023

Analysis of Caregiver Burden Expressed in Social Media Discussions.

Catherine C Shoults, Michael W Rutherford, Aaron S Kemp, Merideth A Addicott, Aliza Brown, Carolyn J Greene, Corey J Hayes, Jennifer M Gan, Linda J Larson-Prior, Jonathan P Bona

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Catherine C ShoultsDepartment of Biomedical Informatics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.ORCID 0000-0003-1960-9062
Michael W RutherfordDepartment of Biomedical Informatics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.ORCID 0000-0003-2665-753X
Aaron S KempDepartment of Biomedical Informatics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.ORCID 0000-0001-6925-5667
Merideth A AddicottDepartment of Physiology and Pharmacology, Wake Forest University School of Medicine, Winston-Salem, NC 27157, USA.ORCID 0000-0003-1814-7994
Aliza BrownDepartment of Neurology, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.
Carolyn J GreeneDepartment of Psychiatry, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.
Corey J HayesDepartment of Biomedical Informatics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.ORCID 0000-0002-7776-6157
Jennifer M GanDepartment of Medical Humanities and Bioethics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.ORCID 0000-0001-6789-1053
Linda J Larson-PriorDepartment of Biomedical Informatics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.
Jonathan P BonaDepartment of Biomedical Informatics, University of Arkansas for Medical Sciences, Little Rock, AR 72205, USA.ORCID 0000-0003-1402-9616

Funding

Expanding Translational Research in ArkansasUL1TR003107 · NCATS · UNIV OF ARKANSAS FOR MED SCIS · PI JAMES, LAURA P · 2019 to 2023
$21.6M
NCATS NIH HHS UL1 TR003107
6 · The paper itself

Abstract

Almost 40% of US adults provide informal caregiving, yet research gaps remain around what burdens affect informal caregivers. This study uses a novel social media site, Reddit, to mine and better understand what online communities focus on as their caregiving burdens. These forums were accessed using an application programming interface, a machine learning classifier was developed to remove low information posts, and topic modeling was applied to the corpus. An expert panel summarized the forums' themes into ten categories. The largest theme extracted from Reddit's forums discussed the personal emotional toll of being a caregiver. This was followed by logistic issues while caregiving and caring for parents who have cancer. Smaller themes included approaches to end-of-life care, physical equipment needs when caregiving, and the use of wearables or technology to help monitor care recipients. The platform often discusses caregiving for parents which may reflect the age of Reddit's users. This study confirms that Reddit forums are used for caregivers to discuss the burdens associated with their role and the types of stress that can result from informal caregiving.

Indexed as

Caregiver BurdenSocial MediaAdultCaregiversHumanscaregiver burdensocial media data miningspillover effects

Identifiers

PMID36767297
PMCPMC9915402

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.