ArticleInternational journal of environmental research and public health2023
Younger Women with Lipedema, Their Experiences with Healthcare Providers, and the Importance of Social Support and Belonging: A Qualitative Study.
Article in International journal of environmental research and public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed, 21 citations in OpenAlex.
- A qualitative study exploring the experiences of individuals living with lipoedema and the impacts it has on their quality of life.International journal of qualitative studies on health and well-being · 2026Article
- What do we know about medical invalidation and related concepts? - A scoping review and thematic analysis about the definitions, measurements, causes, consequences and potential solutions for medical invalidation.BMC health services research · 2026Article
- Lipedema and Dynapenia: Inflammatory Myosteatosis as a Mechanistic Link Between Tissue Expansion and Muscle Dysfunction.International journal of molecular sciences · 2026Review
- Lipedema World Alliance Delphi Consensus-Based Position Paper on the Definition and Management of Lipedema: Results from the 2023 Lipedema World Congress in Potsdam.Nature communications · 2026Article
- Disordered eating risk and well-being in women with lipedema.Frontiers in global women's health · 2026Article
- More than meets the eye: phenomenological insights into the functioning of people with lipoedema.International journal of qualitative studies on health and well-being · 2025Article
- Experiences of Sexual Health and Intimate Relationships in Women With Lipedema: A Qualitative Study.Journal of advanced nursing · 2025Article
- Tirzepatide as a Potential Disease-Modifying Therapy in Lipedema: A Narrative Review on Bridging Metabolism, Inflammation, and Fibrosis.International journal of molecular sciences · 2025Review
- Analysis of the Behavioral Performance and Social Support of Patients in Online Health Communities From User Profile Perspectives: Comparative Study.Journal of medical Internet research · 2025Article
- Examining the characteristic features of lipedema and the usefulness of BMI and WHtR in clinical evaluation.BMC women's health · 2025Article
- Beyond the physical: The interplay of experienced weight stigma, internalised weight bias and depression in lipoedema.Clinical obesity · 2025Article
- Dealing with lipoedema: women's experiences of healthcare, self-care, and treatments-a mixed-methods study.BMC women's health · 2025Article
- Struggles in Accessing Healthcare, the Experiences Made by Women with Lipedema in Sweden - A Qualitative Study.International journal of women's health · 2025Article
- An uncertain uphill battle - experiences and consequences of living with lipedema.International journal of qualitative studies on health and well-being · 2024Article
- Safety and Effectiveness of Liposuction Modalities in Managing Lipedema: Systematic Review and Meta-analysis.Archives of plastic surgery · 2024Article
- Lipedema: a new phenomenon for many people and a new field of study for psychiatry, nutrition, and psychology in Brazil.Revista da Associacao Medica Brasileira (1992) · 2023Article
Corrections and comments
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Authors and funding
2 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Lipedema is a chronic adipose tissue disorder affecting approximately 11% of women worldwide. The illness is often misdiagnosed as obesity, and because of this, women often struggle in meetings with healthcare providers. Few studies have assessed these encounters of younger women with lipedema. The aims of this qualitative study were to explore women's experiences in meetings with healthcare providers and the importance of social support and belonging, with a focus on younger women. Fifteen women with lipedema between the ages of 21 and 47 years (mean age 36.2 years) were interviewed. The results indicated that women felt stigmatized by healthcare providers and that younger women in their 20s and early 30s struggled more often than women of higher age when receiving their diagnosis. The feeling of shame and stigma were also dependent on the woman's resources in handling the illness. The younger women reported that their self-confidence and romantic relationships were challenging. Social support and the feeling of belonging through romantic relationships or support groups were important resources for managing the illness. Highlighting the experiences of women may aid in increasing recognition and knowledge of lipedema. This in turn may reduce the stigma and lead to equitable healthcare services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.