Evidence map›Paper›PMID 36763934›Full record

ArticleJCO global oncology2023

Quality of Dying and Death of Patients With Cancer in Hospice Care in Uganda.

Kenneth Mah, Eve Namisango, Emmanuel Luyirika, Christian Ntizimira, Sarah Hales, Camilla Zimmermann, Carmine Malfitano, Alyssa Tilly, Kayla Wolofsky, Gary Rodin

Open access · goldAbstract read
In one paragraph

Article in JCO global oncology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
2.0field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 7 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 4 institutions in 4 countries.

Kenneth MahDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.ORCID 0000-0001-8920-5253
Eve NamisangoAfrican Palliative Care Association, Kampala, Uganda.ORCID 0000-0001-5032-4714
Emmanuel LuyirikaAfrican Palliative Care Association, Kampala, Uganda.ORCID 0000-0001-6580-3304
Christian NtizimiraAfrican Center for Research on End of Life Care, Kigali, Rwanda.ORCID 0000-0002-8915-0472
Sarah HalesDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
Camilla ZimmermannDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.ORCID 0000-0003-4889-0244
Carmine MalfitanoDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.ORCID 0000-0002-9561-9599
Alyssa TillyDivision of General Medicine and Clinical Epidemiology and Palliative Care Program, University of North Carolina at Chapel Hill, Chapel Hill, NC.ORCID 0000-0002-9670-9297
Kayla WolofskyDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.
Gary RodinDepartment of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.ORCID 0000-0002-6626-6974
University Health Network · CAAfrican Palliative Care Association · UGKing's College London · GBUniversity of North Carolina at Chapel Hill · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeDespite advances in palliative care in Uganda, there has been relatively little recent patient-centered research investigating end-of-life outcomes in this region. We assessed the quality of dying and death of patients with cancer in hospice care in Uganda.

methodsBereaved caregivers of patients who received hospice care in Uganda and died 2-12 months earlier (N = 201) completed the Quality of Dying and Death Questionnaire, which includes 31 items and single-item ratings of overall quality of dying and moment of death, and the FAMCARE measure of family satisfaction with cancer care.

resultsCaregivers reported low-intermediate overall quality of dying (mean [M] standard deviation [SD], 3.25 [2.98]) and overall quality of moment of death (M [SD], 3.59 [3.51]), with 47.0% of the ratings of these two outcomes in the poor range, but the mean family satisfaction with care was high (M [SD], 77.75 [10.26]). Most Quality of Dying and Death Questionnaire items (74.2%) were rated within the intermediate range. Items rated within the good range were religious-spiritual, interpersonal, and personal facets; two items within the poor range reflected physical functioning. Overall quality of dying was most strongly correlated with pain control (Spearman's rho [r

conclusionEnd-of-life care in hospices in Uganda requires further improvement, particularly with regard to symptom control. Patient-centered data could bolster advocacy efforts to support quality improvement of palliative care in this and other countries.

Indexed as

Hospice CareHospicesNeoplasmsHumansPainPalliative CareUganda

Identifiers

PMID36763934
PMCPMC10166526
OpenAlexW4319876424

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.