ArticleFrontiers in public health2023
Social support, positive caregiving experience, and caregiver burden in informal caregivers of older adults with dementia.
Article in Frontiers in public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 76 papers, 7 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
76 citing papers in PubMed, 7 syntheses or guidelines pooled it, 114 citations in OpenAlex.
- Nonpharmacological interventions to improve the sleep of informal caregivers of people with dementia: a systematic review and meta-analysis.The Gerontologist · 2026Pooled it
- A Review of Dementia Caregiver Interventions: Valuing Psychological Well-Being and Economic Impact Through the State-Preference Method.International journal of environmental research and public health · 2026Pooled it
- A systematic review and meta-analysis of psychological burden in family caregivers of patients with brain tumors.Scientific reports · 2025Pooled it
- A systematic review of coping and pre-death grief among dementia family caregivers.Palliative & supportive care · 2025Pooled it
- Interventions for reducing caregiver burden in chronic dyspnea: a meta-analysis.Frontiers in public health · 2025Pooled it
- Unpaid dementia carers: a scoping review of the caregiving trajectory and changing short break needs.Frontiers in health services · 2025Pooled it
- Meta-synthesis of qualitative research on family caregiving experiences for individuals with cognitive impairment: a systematic review.Frontiers in public health · 2025Pooled it
- Effects of the mHealth Supportive Care Program for Family Caregivers of Individuals With Dementia and Diabetes: Pilot Randomized Controlled Trial.JMIR mHealth and uHealth · 2026Trial
- Caregiver burden, mental health, quality of life and self-efficacy of family caregivers of persons with dementia in Malaysia: baseline results of a psychoeducational intervention study.BMC geriatrics · 2024Trial
- Development of and satisfaction with a short-term outpatient preventive medical service for working informal caregivers: a study protocol of a non-randomized prospective pilot study.Pilot and feasibility studies · 2026Article
- Social media use and positive aspects of caregiving: a longitudinal test of the social compensation hypothesis.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- Burden in Informal Caregivers of Palliative Care Patients With Pressure Injuries: Perceived Social Support and Influencing Factors Care Burden in Palliative Caregivers.Journal of evaluation in clinical practice · 2026Article
- Understanding social exclusion among midlife and older family caregivers of Individuals with age related cognitive declines: results from photo-based participatory study.BMC geriatrics · 2026Article
- Aspects of providing care for individuals with vascular dementia - a caregiver's perspective.BMC geriatrics · 2026Article
- Self-Perceived Health, Comorbidity, and Burden Among Older Family Caregivers of Seniors with Severe Mental Disorders: A Cross-Sectional Study.International journal of environmental research and public health · 2026Article
- Variations in Mental Distress Among Caregivers of Individuals With Chronic Illnesses and Comorbid Cognitive Impairment.American journal of preventive medicine · 2026Article
- Care as a Central Concept: Dimensions, Inequalities and Challenges in Chronic Care in Contemporary Societies: A Narrative Review.Healthcare (Basel, Switzerland) · 2026Review
- Social support in Chinese patients with myasthenia gravis and analysis of related factors: a cross-sectional study.BMC neurology · 2026Article
- Enhancing empathy and attitudes toward dementia among formal caregivers through virtual reality: a randomized controlled trial.Innovation in aging · 2026Article
- Trajectories of family resilience among caregivers of older adults with dementia: a longitudinal study in community-based geriatric care settings.Frontiers in public health · 2026Article
16 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Dementia is currently one of the major causes of disability and dependency among older adults worldwide. Cognitive dysfunction, neuropsychiatric symptoms, somatic complaints, and functional impairment fundamentally affect not only a person living with dementia (PLwD), but also his/her informal caregiver(s), often resulting in a high caregiver burden. A number of variables, including the caregiver's sociodemographic characteristics, the clinical characteristics of PLwD, social support, and the caregiver's personal resources determine the caregiver's burden. Objectives: The aim of this study was to investigate the associations of caregiver burden in informal caregivers of PLwD with perceived social support, positive caregiving experience, and applying therapeutic communication methods. Methods: The data were collected from September 2021 to February 2022 among 115 "PLwD-informal caregiver" dyads in the community settings in Slovakia. Measures included the Zarit Burden Interview (ZBI-12), the Oslo Social Support Scale (OSSS-3), the Positive Aspects of Caregiving Scale (PACS), and two questions on applying therapeutic communication methods-reminiscence and validation according to Naomi Feil. The Short IQCODE was used for assessing cognitive decline in PLwD. Pearson's and Spearman's correlations, Results: The mean age of informal caregivers was 54 ± 12.4 years (81.7% of women) and the mean caregiving duration was 4.8 ± 4.8 years. The mean age of PLwD was 80.5 ± 8.3 years (73.0% of women) and their Short IQCODE mean score was 4.1 ± 1.0. Lower caregiving burden was significantly associated with higher perceived social support (β = 0.33, Conclusions: Implementing psycho-social and educational public health interventions focused on strengthening social support and maintaining positive perceptions of caregiving can help reduce the increased risk of caregiver burden in informal caregivers of older adults with dementia.
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