ArticleJournal of eating disorders2023
"Work WITH us": a Delphi study about improving eating disorder treatment for autistic women with anorexia nervosa.
Article in Journal of eating disorders, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 28 citations in OpenAlex.
- Understanding the Autistic Experience of Restrictive Eating Disorders-A Systematic Review and Qualitative-Synthesis.European eating disorders review : the journal of the Eating Disorders Association · 2025Pooled it
- A Mixed Method Systematic Review Into the Impact of ED Treatment in Autistic People and Those With High Autistic Traits.The International journal of eating disorders · 2025Pooled it
- Iatrogenic Harm, Psychotherapy, and Eating Disorders: An Urgent Call to Action.International journal of mental health nursing · 2026Article
- Exploring career concerns and opportunities for UK-based early career researchers working in the field of eating disorders: Delphi study.BJPsych open · 2026Article
- Cognitive behavioural therapy is not universally evidence-based: implications for eating disorders.Journal of eating disorders · 2026Article
- Time to notice neurodiversity in eating disorder services: a three-year real-world analysis of autism, ADHD, and AuDHD.Frontiers in psychiatry · 2026Article
- Regulating with food: a qualitative study of Neurodivergent experiences in adults with binge eating disorder.Journal of eating disorders · 2025Article
- Bingeing as an ADHD-related strategy: a qualitative study of experiences of Neurodivergent and potentially Neurodivergent adults with bulimic-spectrum eating disorders.Eating and weight disorders : EWD · 2025Article
- Finding the Prevalence of Autism in Female Mental Illness: Improving Child Development for an Underdiagnosed and Undertreated Population.Children (Basel, Switzerland) · 2025Article
- "No one was coming to save us": an interpretative phenomenological analysis exploring the experience of parents supporting their autistic daughter through anorexia nervosa.Journal of eating disorders · 2025Article
- Learning From Those Who Have Lived: A Scoping Review Exploring the Involvement of Lived Experience Co-Design in Eating Disorder Research Methodologies.The International journal of eating disorders · 2025Article
- Understanding the child and adolescent eating disorder treatment experiences of autistic people and parents.Journal of eating disorders · 2025Article
- Disabilities and eating disorders: A theoretical model and call for research.Eating behaviors · 2025Review
- Neurodivergence, intersectionality, and eating disorders: a lived experience-led narrative review.Journal of eating disorders · 2024Review
- The clinical characteristics of autistic women with restrictive eating disorders.BJPsych open · 2024Article
- Expanding considerations for treating avoidant/restrictive food intake disorder at a higher level of care.Journal of eating disorders · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is an increased prevalence of anorexia nervosa (AN) in autistic women and this group has poorer treatment outcomes compared to non-autistic women with AN. However, there is little research into improving eating disorder treatment for autistic women. This study investigated how best to support autistic women with AN within eating disorder services.
methodA three-stage Delphi study was conducted with 49 participants with relevant expertise as a researcher, clinician, or expert by experience.
resultsA total of 70 statements were generated, with 56 reaching consensus after the final round. Statements reaching consensus made recommendations for adaptations to treatment, staff training, and service organisation.
conclusionsThe results highlight the need to distinguish between autism- and AN-related difficulties, accommodate autistic traits such as sensory sensitivities and communication differences, and ensure the autistic voice is present in both the development and delivery of care. Future research should investigate the impact of these adaptations on outcomes. The applicability of these recommendations to autistic people with other eating disorders and of other genders needs to be investigated further.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.