Evidence map›Paper›PMID 36757543›Full record

ArticleJournal of autism and developmental disorders2024

The Well-being and Support Needs of Australian Caregivers of Neurodiverse Children.

Emily D'Arcy, Tayah Burnett, Emily Capstick, Catherine Elder, Olivia Slee, Sonya Girdler, Melissa Scott, Ben Milbourn

Open access · hybridAbstract read
In one paragraph

Article in Journal of autism and developmental disorders, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 1 pooled it
6.9field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 1 synthesis or guideline pooled it, 23 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Article
  8. Our Challenges, Our Solutions: The Impact of Autism on Families.Journal of autism and developmental disorders · 2025
    Article
  9. Close Relationships Despite the Challenges: Sibling Relationships and Autism.Journal of autism and developmental disorders · 2025
    Article
  10. Article
  11. Article
  12. Article
  13. Perceived Support Needs of School-Aged Young People on the Autism Spectrum and Their Caregivers.International journal of environmental research and public health · 2022
    Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Emily D'ArcyCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Tayah BurnettCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Emily CapstickCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Catherine ElderCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Olivia SleeCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Sonya GirdlerCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Melissa ScottCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia.
Ben MilbournCurtin Scool of Allied Health, Curtin University, 6102, Perth, Western Australia. ben.milbourn@curtin.edu.au.
Curtin University · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Caregivers of children with neurodiverse needs are known to experience challenges and hardship due to the increased needs of the child and the lack of support available. This study aimed to explore the support needs and well-being of caregivers of children with neurodiverse needs in Australia. Sixty-six caregivers participated in an online survey asking questions about support needs. The results highlighted five main themes that caregivers commonly experienced including: barriers to community engagement, impact on close relationships, negative impact on mental health and identity, financial hardship, and identified support needs. Findings identified multiple unmet needs existing amongst caregivers and further emphasises the importance of addressing these needs to improve the quality of life of caregivers of children with neurodiverse needs.

Indexed as

CaregiversQuality of LifeSocial SupportAdolescentAdultAustraliaChildFemaleHumansMaleMental HealthMiddle AgedSurveys and QuestionnairesYoung AdultCaregiverMental HealthNeurodivergentSupport NeedsWell-being

Identifiers

PMID36757543
PMCPMC9909132
OpenAlexW4319656933

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.