Evidence map›Paper›PMID 36755531›Full record

ArticleJournal of clinical and translational science2023

"Research Jam": Engaging patients and other stakeholders through human-centered design to improve translational research.

Sarah E Wiehe, Courtney M Moore, Dustin O Lynch, Gina Claxton, Nerissa S Bauer, Helen Sanematsu

Abstract read
In one paragraph

Article in Journal of clinical and translational science, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Using Human-Centred Design to Codesign Patient Engagement Tools With a Patient Advisory Council: Successes and Challenges.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  3. Article
  4. Article
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sarah E WieheChildren's Health Services Research, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN, USA.ORCID https://orcid.org/0000-0002-8148-0848
Courtney M MooreCommunity Health Partnerships, Indiana Clinical and Translational Sciences Institute, Indiana University, Indianapolis, IN, USA.
Dustin O LynchCommunity Health Partnerships, Indiana Clinical and Translational Sciences Institute, Indiana University, Indianapolis, IN, USA.
Gina ClaxtonCommunity Health Partnerships, Indiana Clinical and Translational Sciences Institute, Indiana University, Indianapolis, IN, USA.
Nerissa S BauerNSB Consulting LLC, Carmel, IN, USA.
Helen SanematsuCommunity Health Partnerships, Indiana Clinical and Translational Sciences Institute, Indiana University, Indianapolis, IN, USA.

Funding

Indiana Clinical and Translational Sciences InstituteUL1TR001108 · NCATS · INDIANA UNIVERSITY INDIANAPOLIS · PI DENNE, SCOTT C., SHEKHAR, ANANTHA · 2013 to 2017
$23.3M
AHRQ HHS R24 HS022434NCATS NIH HHS UL1 TR001108
6 · The paper itself

Abstract

Effective stakeholder engagement increases research relevance and utility. Though published principles of community-based participatory research and patient-centered outcomes research offer guidance, few resources offer effective techniques to engage stakeholders and translate their engagement into improvements in research process and outcomes. The Indiana Clinical and Translational Sciences Institute (Indiana CTSI) is home to Research Jam (RJ), an interdisciplinary team of researchers, project management professionals, and design experts, that employs human-centered design (HCD) to engage stakeholders in the research process. Establishing HCD services at the Indiana CTSI has allowed for accessible and innovative stakeholder-engaged research. RJ offers services for stakeholder-informed study design, measurement, implementation, and dissemination. RJ's services are in demand to address research barriers pertaining to a diverse array of health topics and stakeholder groups. As a result, the RJ team has grown significantly with both institutional and extramural support. Researchers involved in RJ projects report that working with RJ helped them learn how to better engage with stakeholders in research and changed the way they approach working with stakeholders. RJ can serve as a potential model for effectively engaging stakeholders through HCD to improve translational research.

Indexed as

human-centered designparticipatory designPatient and stakeholder engagementresearch barrierstranslational research

Identifiers

PMID36755531
PMCPMC9879876

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.