ArticleBMC pediatrics2023
Current situation and influencing factors of disease uncertainty in parents of children with Sturge‒Weber syndrome: a retrospective study.
Article in BMC pediatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 5 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
5 citing papers in PubMed, 4 citations in OpenAlex.
- Modifiers of perceived stress in caregivers of children with Sturge-Weber syndrome: a cross-sectional, single-site study.Translational pediatrics · 2026Article
- Perception of uncertainty among parents of children with pneumonia undergoing mechanical ventilation: what should we focus on.BMC pediatrics · 2026Article
- Knowledge, attitude and practice of patients and their family members regarding age-related macular degeneration: a cross-sectional study.Frontiers in public health · 2026Article
- Understanding the complex network of anxiety, depression, sleep problems, and smartphone addiction among college art students using network analysis.Frontiers in psychiatry · 2025Article
- Correction: Current situation and influencing factors of Disease uncertainty in parents of children with Sturge‒Weber syndrome: a retrospective study.BMC pediatrics · 2023Article
Corrections and comments
- Erratum issued
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSturge Weber syndrome (SWS), can cause extensive capillary malformations on the face, head, trunk, and other parts of the body, and the eyes can also suffer optic nerve injury. Secondary glaucoma can cause blindness, which has the characteristics of a relatively hidden onset and unclear pathogenesis. The treatment of SWS secondary glaucoma has always been difficult, and due to the characteristics of the disease, there is uncertainty about the long-term efficacy and safety of various treatment methods for such patients.
methodsA total of 105 parents of children with SWS completed a self-designed general information questionnaire, a generalized anxiety questionnaire (GAD-7), a patient health questionnaire (PHQ-2), a stress perception scale (PSS-4), a simple coping scale (SCSQ) and a disease-uncertainty scale (PPUS).
resultsThe total uncertainty score of parents of children with SWS was 79.07 ± 13.24, and the average item score was 2.82 ± 0.47. Multiple linear regression analysis revealed that anxiety and simple coping were the main influencing factors of disease uncertainty among parents of children with SWS (P < 0.05).
conclusionsParents of children with SWS exhibit a high level of disease uncertainty. Medical staff should pay attention to the source of parents' disease uncertainty and provide targeted interventions, which are of great importance in reducing parents' disease uncertainty.
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