Evidence map›Paper›PMID 36750357›Full record

ArticleAnnals of family medicine

Disparities in Shared Decision-Making Research and Practice: The Case for Black American Patients.

Yaara Zisman-Ilani, Shely Khaikin, Margot L Savoy, Anuradha Paranjape, Daniel J Rubin, Regina Jacob, Thomas H Wieringa, John Suarez, Jin Liu, Heather Gardiner and 3 more

Open access · diamondAbstract read
In one paragraph

Article in Annals of family medicine. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed, 2 pooled it
11.4field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 2 syntheses or guidelines pooled it, 26 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Stories From Black Women in Iowa About Reproductive Health Care Experiences, Self-Advocacy, and Recommendations for Change.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
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  6. Review
  7. Health disparities in neurology.Nature reviews. Neurology · 2025
    Review
  8. Observational
  9. Article
  10. Article
  11. Article
  12. Engaging Patients in Discussions About Medication Deprescribing.Journal of general internal medicine · 2025
    Article
  13. Culturally appropriate patient-provider communication methods for Black women with breast cancer: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  14. Article
  15. Review
  16. Article
  17. Article
  18. Article
  19. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 3 institutions in 3 countries.

Yaara Zisman-IlaniCollege of Public Health, Temple University, Philadelphia, Pennsylvania yaara@temple.edu.
Shely KhaikinShared Decision Making Laboratory, Temple University, Philadelphia, Pennsylvania.
Margot L SavoyLewis Katz School of Medicine, Temple University, Philadelphia, Pennsylvania.
Anuradha ParanjapeLewis Katz School of Medicine, Temple University, Philadelphia, Pennsylvania.
Daniel J RubinLewis Katz School of Medicine, Temple University, Philadelphia, Pennsylvania.
Regina JacobLewis Katz School of Medicine, Temple University, Philadelphia, Pennsylvania.
Thomas H WieringaDepartment of Biomedical Data Sciences, Leiden University Medical Center, Leiden, The Netherlands.
John SuarezShared Decision Making Laboratory, Temple University, Philadelphia, Pennsylvania.
Jin LiuShared Decision Making Laboratory, Temple University, Philadelphia, Pennsylvania.
Heather GardinerCollege of Public Health, Temple University, Philadelphia, Pennsylvania.
Sarah Bauerle BassCollege of Public Health, Temple University, Philadelphia, Pennsylvania.
Victor M MontoriMayo Clinic, Rochester, Minnesota.
Laura A SiminoffCollege of Public Health, Temple University, Philadelphia, Pennsylvania.
Temple University · USLeiden University Medical Center · NLMayo Clinic · US

Funding

Examining the effectiveness of a shared decision making intervention for antipsychotic medications to improve engagement in treatment for people experiencing early psychosisR34MH128497 · NIMH · NEW YORK STATE PSYCHIATRIC INSTITUTE DBA RESEARCH FOUNDATION FOR MENTAL HYGIENE, INC · PI DIXON, LISA B., ZISMAN-ILANI, YAARA · 2022 to 2023
$499k
NIMH NIH HHS R34 MH128497
6 · The paper itself

Abstract

objectiveThe extent of shared decision making (SDM) use in the care of Black patients is limited. We explored preferences, needs, and challenges of Black patients to enhance SDM offerings.

methodsWe performed interviews with 32 Black patients receiving type 2 diabetes care in safety-net primary care practices caring predominantly for Black people.

resultsThe following 4 themes emerged: preference for humanistic communication, need to account for the role of family in decision making, need for medical information sharing, and mistrust of clinicians.

conclusionGiven the dearth of research on SDM among ethnic and racial minorities, this study offers patient-perspective recommendations to improve SDM offerings for Black patients in primary care settings. To enhance SDM with Black patients, acknowledgment of the importance of storytelling as a strategy, to place medical information in a context that makes it meaningful and memorable, is recommended. Triadic SDM, in which family members are centrally involved in decision making, is preferred over classical dyadic SDM. There is a need to reconsider the universalism assumption underlying contemporary SDM models and the relevancy of current SDM practices that were developed mostly without the feedback of participants of ethnic, racial, and cultural minorities.

Indexed as

Decision Making, SharedDiabetes Mellitus, Type 2Black or African AmericanDecision MakingHumansPatient ParticipationBlack/African Americanshealth disparitiesshared decision makingtype 2 diabetes

Identifiers

PMID36750357
PMCPMC10042565
OpenAlexW4319338338

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.