ArticleCouple & family psychology2022
"We Moved Her Too Soon": Navigating Guilt Among Adult Child and Spousal Caregivers of Persons Living with Dementia Following a Move into Residential Long-Term Care.
Article in Couple & family psychology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it, 30 citations in OpenAlex.
- Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers.The Gerontologist · 2026Pooled it
- How Do Spouses Experience Living Alone After Their Partner With Dementia Moves Into a Care Home?Journal of clinical nursing · 2025Pooled it
- Efficacy of the residential care transition module: A telehealth intervention for dementia family caregivers of relatives living in residential long-term care settings.Psychology and aging · 2024Trial
- Trial
- Article
- Use of Personal and Social Resourcefulness by Adult-Child and Spousal Caregivers of Persons with Dementia.International journal of aging & human development · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Navigating late-life parental care transitions: implications for adult children's psychosocial well-being.The Gerontologist · 2026Article
- Program Theory and Core Outcome Set Development for a Technology-Assisted Counseling Intervention in Dementia: Multimethods Study.Journal of medical Internet research · 2026Article
- Transitions to Long-Term Care for People Living with Dementia: Social Death and Social (Dis) Connections.Nursing reports (Pavia, Italy) · 2025Article
- Variations in State Essential Caregiver Programs for Nursing Homes During the COVID-19 Pandemic.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Nursing ethical dimensions of euthanasia and medically assisted suicide for older people in need of long-term care.Frontiers in psychiatry · 2025Article
- Sentiment Dynamics Among Informal Caregivers in Web-Based Alzheimer Communities: Systematic Analysis of Emotional Support and Interaction Patterns.JMIR aging · 2024Article
- Informal care provided in US nursing homes: Reduced from 2010 to 2021 and lower for Medicaid residents.Journal of the American Geriatrics Society · 2024Article
- The Implementation Success of Technology-Based Counseling in Dementia Care: Scoping Review.JMIR aging · 2024Article
- Examining Online Behaviors of Adult-Child and Spousal Caregivers for People Living With Alzheimer Disease or Related Dementias: Comparative Study in an Open Online Community.Journal of medical Internet research · 2023Article
- Self-Help Groups within Nursing Homes: The Experiences of Family Caregivers in Northeastern Italy.Behavioral sciences (Basel, Switzerland) · 2023Article
- Disruptions in Relational Continuity: The Impact of Pandemic Public Health Measures on Families in Long-Term Care.Journal of family nursing · 2023Article
- Reimagining Family Involvement in Residential Long-Term Care.Journal of the American Medical Directors Association · 2022Article
- A Qualitative Analysis of Mechanisms of Benefit in the Residential Care Transition Module: A Telehealth Intervention for Caregivers of Relatives With Dementia Living in Residential Long-Term Care.Inquiry : a journal of medical care organization, provision and financingArticle
Corrections and comments
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Authors and funding
8 authors at 2 institutions in 2 countries.
Funding
Abstract
Guilt is a complex and multifaceted emotion navigated by many family caregivers. Guilt is sometimes experienced following a transition into a residential long-term care facility, even when the move is necessary given high care needs related to Alzheimer's disease and related dementias. This mixed methods study identifies and compares areas of guilt most frequently experienced by spouse and adult child caregivers (N=83) of a family member with dementia following transition into residential long-term care. Nearly half of caregivers reported experiencing guilt from their care recipient, other family members, or facility staff. Quantitative analyses explored variables that predict heightened feelings of guilt, and qualitative thematic analyses provided rich insight into subjective experiences of guilt. Person-specific and situational characteristics influenced caregiver guilt, including level of involvement in care, frequency and quality of visits, and perceptions of the residential long-term care facility. We identify specific opportunities for tailored couple and family psychology interventions including communication strategies, decision-making approaches, focusing on positives, psychoeducation, self-forgiveness exercises, stress management and self-care activities, and validation. The present work informs how counseling interventions can provide practical support by highlighting specific clinical mechanisms that help to alleviate common facets of caregiver guilt following a transition into residential long-term care. Critically, we distinguish variation between spouses and adult children to design treatment plans that best support clients who are caring for a person living with dementia in residential long-term care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.