ArticlePalliative medicine2023
Communication in the context of glioblastoma treatment: A qualitative study of what matters most to patients, caregivers and health care professionals.
Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Shared decision-making in palliative cancer care: A systematic review and metasynthesis.Palliative medicine · 2024Pooled it
- Patient perspectives on diagnostic uncertainty and novel diagnostic tests in neuro-oncology.Neuro-oncology practice · 2026Article
- Communication Processes and Priorities in Medical Aid in Dying Conversations: A Cross-Sectional Qualitative Study of Multidisciplinary Cancer Clinicians.Cancer medicine · 2026Article
- A scoping review: Understanding brain tumor patients' decisional needs and preferences.Neuro-oncology practice · 2025Review
- The communication of a high-grade glioma diagnosis- patients' reflections and perspectives based on a study-specific questionnaire.Journal of neuro-oncology · 2025Article
- "What is this brain's story?" Healthcare professionals' perspectives on managing brain tumor-related personality and behavior changes.Neuro-oncology practice · 2025Article
- Well-being and coping: Key aspects of unmet need of people living with glioma.Neuro-oncology practice · 2025Article
- "We are a club none of us wanted to join": exploring brain tumor online discussion forum content.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Missing the message to brain tumor patients: a 2023 twitter analysis among patients, informal caregivers, and healthcare professionals in glioblastoma multiforme.Journal of neuro-oncology · 2025Article
- A thematic analysis of shared decision-making in consultations with patients with a presumed brain tumor and neurosurgeons.Neuro-oncology practice · 2025Article
- Recreational Travel of Patients with Brain Tumor and Their Caregivers: Context, Preparation, and Impact.Journal of palliative medicine · 2025Article
- "You sure feel like you're alone, kind of flailing away out there": Family caregiver perspectives of caring for an individual with glioblastoma multiforme.Palliative & supportive care · 2025Article
- Health-Related Quality of Life and Treatment Satisfaction of Patients with Malignant IDH Wild-Type Gliomas and Their Caregivers.Current oncology (Toronto, Ont.) · 2024Article
- Living with glioblastoma - the need for integrated support based on experiences of chaos, loss of autonomy, and isolation in both patients and their relatives.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Healthcare Communication Experiences of Hispanic Caregivers of Childhood Cancer Survivors.Healthcare (Basel, Switzerland) · 2024Article
- Rehabilitation in People Living with Glioblastoma: A Narrative Review of the Literature.Cancers · 2024Review
- The experience of interval scans for adults living with primary malignant brain tumors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- A retrospective chart review to identify the involvement of palliative care with glioblastoma multiforme patients.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2023Article
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Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 1 institution in 1 country.
Funding
Abstract
backgroundPatients with glioblastoma have a poor prognosis and treatment is palliative in nature from diagnosis. It is therefore critical that the benefits and burdens of treatments are clearly discussed with patients and caregivers.
aimTo explore experiences and preferences around glioblastoma treatment communication in patients, family caregivers and healthcare professionals.
designQualitative design. A thematic analysis of semi-structured interviews. SETTING/
participantsA total of 15 adult patients with glioblastoma, 13 caregivers and 5 healthcare professionals were recruited from Leeds Teaching Hospitals NHS Trust.
resultsFour themes were identified: (1)
conclusionsIn glioblastoma treatment communication, where prognosis is poor and treatmentwill not result in cure, building trusting relationships, maintaining a sense of control and being well-informed are identified as critical.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.