ArticleCanadian journal of pain = Revue canadienne de la douleur2023
Understand me: Youth with chronic pain on how knowledge gaps influence their pain experience.
Article in Canadian journal of pain = Revue canadienne de la douleur, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- Codesign and system integration as interacting demands in digital health for youth experiencing chronic pain.Pain reports · 2026Article
- Co-Designing a Consumer-Centred Educational Resource to Assist Australian Farmers with the Management of Persistent Pain.International journal of environmental research and public health · 2026Article
- Optimizing psychological treatments for pediatric chronic pain to enhance outcomes, availability, and accessibility.Current opinion in psychology · 2025Review
- Pain Research and Treatment: Policy Implications.Policy insights from the behavioral and brain sciences · 2024Article
- Collaborating with a Youth Council to Improve Chronic Pain Resources.Canadian journal of pain = Revue canadienne de la douleur · 2023Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: There is a perceived lack of readily available resources to support self-management skills in youth living with chronic pain. The perspectives of youth regarding information gaps may improve the effectiveness of resources developed for them. Aim: The aim of this study was to explore the perspectives of youth living with chronic pain on the interactions among their pain experiences, chronic pain resources and research. Methods: Using an interpretive paradigm, we interviewed seven participants (age range 12-19 years) diagnosed with chronic pain. Two frameworks for meaningful engagement of citizens in research and policy informed the interview guide. Data were analyzed inductively using content analysis approaches to examine patterns and develop themes. Results: The participants' perceptions were captured by the overarching theme of "understand me." Four subthemes elaborate on the relationship between the participants' experiences and how their lives could be enhanced through research and knowledge mobilization. In the subtheme "my unique pain experience," the participants help us understand them by chronicling the variation in presentation of their chronic pain. The subtheme "people don't know it's a thing" emphasizes that there is general misunderstanding of chronic pain by the public and in the participants' support systems. The first two subthemes influence the third, which describes how the pain "kind of stops you from living." The fourth subtheme, "knowledge offers hope," offers a solution to dismantling misunderstanding of youth living with chronic pain. Conclusion: Future work needs to focus on embedding health literacy and knowledge mobilization into health and education structures to promote developmentally relevant self-management skills.
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