ArticleJournal of pain and symptom management2023
Patient-Caregiver Dyads' Prognostic Information Preferences and Perceptions in Advanced Cancer.
Article in Journal of pain and symptom management, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 13 citations in OpenAlex.
- Dyadic Coping and Illness Uncertainty in Cancer Patient-Caregiver Dyads: Interactive Mechanisms, Heterogeneity, and Integrated Intervention Directions-A Narrative Review (2021-2025).Healthcare (Basel, Switzerland) · 2026Review
- Perspectives of patients, partners, primary and hospital-based health care professionals on living with advanced cancer and systemic treatment.Journal of cancer survivorship : research and practice · 2026Article
- Prognostic awareness in family caregivers of patients with terminal illness: a scoping review.BMJ open · 2025Article
- The caregiver's journey: A qualitative study on the integration of family caregivers of advanced cancer patients in outpatient settings in Germany.Palliative & supportive care · 2025Article
- Patient-caregiver concordance on death preparedness over Taiwanese cancer patients' last 6 months.The oncologist · 2025Article
- Reliability of EMR to Document Serious Illness Content in Tele-palliative Care in Dialysis.Journal of pain and symptom management · 2025Article
- Evaluating the acceptability of a self-directed, self-management intervention for patients and caregivers facing advanced cancer.Palliative & supportive care · 2025Article
- Cancer prognosis information-seeking among survivors and caregivers: findings from the National Cancer Institute's Cancer Information Service.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Ethical Dilemmas Among Oncology Nurses in China: Cross-Sectional Study.Asian/Pacific Island nursing journal · 2024Article
- Prevalence and Predictors of Physician-Patient Discordance in Prognostic Perceptions in Advanced Cancer.The oncologist · 2023Article
- Caregivers' attitudes toward blood-based biomarker testing for Alzheimer's disease.Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 4 institutions in 2 countries.
Funding
Abstract
contextPrognostic information is considered important for advanced cancer patients and primary informal caregivers to prepare for the end of life. Little is known about discordance in patients' and caregivers' prognostic information preferences and prognostic perceptions, while such discordance complicates adaptive dyadic coping, clinical interactions and care plans.
objectivesTo investigate the extent of patient-caregiver discordance in prognostic information preferences and perceptions, and the factors associated with discordant prognostic perceptions.
methodsWe conducted secondary analyses of a cross-sectional study (PROSPECT, 2019-2021). Advanced cancer patients (median overall survival ≤12 months) from seven Dutch hospitals and caregivers completed structured surveys (n = 412 dyads).
resultsSeven percent of patient-caregiver dyads had discordant information preferences regarding the likelihood of cure; 24%-25% had discordant information preferences regarding mortality risk (5/2/1 year). Seventeen percent of dyads had discordant perceptions of the likelihood of cure; 12%-25% had discordant perceptions of mortality risk (5/2/1 year). Dyads with discordant prognostic information preferences (P < 0.05) and dyads in which patients reported better physical functioning (P < 0.01) were significantly more likely to perceive the one-year mortality risk discordantly.
conclusionPhysicians should be sensitive to discordant prognostic information preferences and prognostic perceptions among patient-caregiver dyads in advanced cancer care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.