Evidence map›Paper›PMID 36728708›Full record

ArticleJournal of pediatric psychology2023

Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia.

Nathan L Basile, Taylor M Dattilo, Alexandra M DeLone, Jacob D Kraft, Clayton S Edwards, Cindy L Buchanan, Earl Y Cheng, Dix P Poppas, Amy B Wisniewski, Larry L Mullins

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pediatric psychology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.2field-weighted citation impact, top 44% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 5 institutions in 1 country.

Nathan L BasileDepartment of Psychology, Center for Pediatric Psychology, Oklahoma State University, USA.ORCID 0000-0001-7944-2087
Taylor M DattiloDepartment of Psychology, Center for Pediatric Psychology, Oklahoma State University, USA.ORCID 0000-0001-7314-5364
Alexandra M DeLoneDepartment of Psychology, Center for Pediatric Psychology, Oklahoma State University, USA.
Jacob D KraftDepartment of Psychiatry, University of Michigan, USA.
Clayton S EdwardsDepartment of Psychology, Center for Pediatric Psychology, Oklahoma State University, USA.
Cindy L BuchananDepartment of Psychiatry, University of Colorado Anschutz Medical Campus, USA.
Earl Y ChengDepartment of Urology, Ann & Robert H. Lurie Children's Hospital of Chicago, USA.
Dix P PoppasInstitute for Pediatric Urology, Komansky Children's Hospital, New York Presbyterian Hospital-Weill Cornell Medicine, USA.
Amy B WisniewskiDepartment of Psychology, Center for Pediatric Psychology, Oklahoma State University, USA.
Larry L MullinsDepartment of Psychology, Center for Pediatric Psychology, Oklahoma State University, USA.
Oklahoma State University Oklahoma City · USLurie Children's Hospital · USNewYork–Presbyterian Hospital · USUniversity of Colorado Anschutz Medical Campus · USUniversity of Michigan · US

Funding

Short-term outcomes of interventions for reproductive dysfunctionR01HD074579 · NICHD · UNIVERSITY OF OKLAHOMA HLTH SCIENCES CTR · PI MULLINS, LARRY L., WISNIEWSKI, AMY B · 2013 to 2022
$4.3M
NICHD NIH HHS R01 HD074579
6 · The paper itself

Abstract

objectiveIllness uncertainty is a salient experience for caregivers of children with disorders/differences of sex development (DSD) presenting with ambiguous genitalia; however, no validated measure of illness uncertainty exists for this unique population. Thus, the current study aimed to preliminarily identify the factor structure of the Parental Perception of Uncertainty Scale (PPUS) in caregivers of children with DSD presenting with ambiguous genitalia and examine the convergent validity of the PPUS.

methodsParticipants included 115 caregivers (Mage = 32.12 years, SD = 6.54; 57% mothers) of children (<2-year-olds) diagnosed with DSD participating in a larger, longitudinal study. Caregivers completed the PPUS as well as self-report measures of anxious, depressive, and posttraumatic stress symptoms. An exploratory factor analysis was conducted.

resultsExploratory factor analysis results indicated that a 23-item 1-factor solution was the most parsimonious and theoretically sound factor structure (α = 0.92). Convergent validity analyses demonstrated further support for the use of the 23-item 1-factor solution over the original PPUS factor structure.

conclusionThese results demonstrate the preliminary clinical and research utility of the PPUS with caregivers of children with DSD presenting with ambiguous genitalia. The PPUS may benefit from further refinement through qualitative research and item adaptation to capture uncertainties unique to DSD presenting with ambiguous genitalia. In addition, future research should replicate the proposed factor structure using confirmatory factor analysis with a separate, larger sample of caregivers of children with DSD to confirm the factor structure.

Indexed as

Disorders of Sex DevelopmentAnxietyChildChild, PreschoolFemaleHumansLongitudinal StudiesParentsUncertaintyDSDEFAfactor analysisillness uncertaintyPPUS

Identifiers

PMID36728708
PMCPMC10118853
OpenAlexW4318929333

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.