Evidence map›Paper›PMID 36715228›Full record

ArticleJournal of advanced nursing2023

The genogram as a recruitment tool for identifying primary caregivers of youth living with sickle cell disease preparing for transition.

Maureen Varty, Barbara Speller-Brown, Popejoy, Katherine Patterson Kelly

Open access · greenAbstract read
In one paragraph

Article in Journal of advanced nursing, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.5field-weighted citation impact, top 36% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 1 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Maureen VartyUCHealth University of Colorado Hospital, Aurora, Colorado, USA.ORCID https://orcid.org/0000-0001-6176-9532
Barbara Speller-BrownChildren's National Hospital, Washington, DC, USA.
PopejoyUniversity of Missouri-Columbia Sinclair School of Nursing, S235 School of Nursing, University of Missouri, Columbia, Missouri, USA.ORCID https://orcid.org/0000-0002-3701-7231
Katherine Patterson KellyChildren's National Hospital, Washington, DC, USA.
Children's National · USUniversity of Colorado Hospital · USUniversity of Missouri · US

Funding

Factors Predicting Transition Readiness in Youth with Sickle Cell DiseaseF31NR018574 · NINR · UNIVERSITY OF MISSOURI-COLUMBIA · PI VARTY, MAUREEN M · 2019 to 2019
$28k
NIH HHSNINR NIH HHS F31 NR018574NINR NIH HHS F31NR018574
6 · The paper itself

Abstract

aimsThe purpose of this secondary analysis was to describe the impact of using genograms to identify family caregivers from an original research study which used family caregiver-adolescents/young adults (AYA) dyads.

backgroundResearch to improve transition preparation for AYA with chronic disease is essential as 90% will survive into adulthood. Family-based transition research is specifically needed as a majority of transition preparation will occur in the home setting. Dyadic research on transition has not previously described strategies for recruiting appropriate family caregivers.

designA descriptive, secondary analysis was conducted using genograms developed during the original study conducted between October 2019 and February 2020.

methodsFor this secondary analysis conducted between July 2020 and August 2021, 50 genograms were analysed using descriptive statistics to describe family structures, relationships and responsibilities in families of AYAs living with sickle cell disease.

resultsIn 43 genograms, there was only one primary caregiver in the family. In seven genograms, there were multiple primary caregivers who met the inclusion criteria for primary caregiver in a single family. In five genograms, there were two appropriate primary caregivers in a single family, and in two genograms, there were three appropriate individuals in a single family who met study criteria as a primary caregiver.

conclusionsFindings from the analysis of the genograms used in the original study demonstrated potential ability to improve on dyad recruitment by more specifically identifying the family member most involved in supporting the AYA's disease management. IMPACT: Genograms are an established tool for gathering information on families and application with recruitment could improve research in the realm of transition and other family-based research. NO PATIENT OR PUBLIC CONTRIBUTION: This was a secondary analysis that assessed already existing data.

Indexed as

adolescentchronic diseasefamilygenogramsnursingrecruitmentresearch methodssickle celltransitionyoung adults

Identifiers

PMID36715228
PMCPMC10470442
OpenAlexW4318477482

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.