SynthesisSocial science & medicine (1982)2023
Towards evidence-based and inclusive models of peer support for long covid: A hermeneutic systematic review.
Synthesis in Social science & medicine (1982), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it, 38 citations in OpenAlex.
- Psychosocial Aspects of the Lived Experience of Long COVID: A Systematic Review and Thematic Synthesis of Qualitative Studies.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Perceptions of People From South Asian Backgrounds With Chronic Kidney Disease on Digital Health Interventions: Patient and Public Involvement and Engagement Consultation Focus Group.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- "That's not my silo": Navigating fragmented long COVID care in the mid-Atlantic United States.SSM. Qualitative research in health · 2026Article
- Vital yet Fragile: Informal Networks of Support Among Young People Navigating Long Covid.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- How do people with post-COVID syndrome in Germany experience healthcare and information provision? A qualitative interview study.BMJ open · 2026Article
- How a long COVID rehabilitation intervention works: refining its programme theory through a realist-informed qualitative study.BMC health services research · 2025Article
- Addressing Inequalities in Long Covid Healthcare: A Mixed-Methods Study on Building Inclusive Services.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Long COVID in healthcare workers: longitudinal mixed-methods study.Occupational medicine (Oxford, England) · 2025Article
- 'We Don't Have to Prove to People How We're Feeling': Understanding the Role of Peer Support Groups in Countering Epistemic Injustices in Long COVID at a US Centre.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- The Long or the Post of It? Temporality, Suffering, and Uncertainty in Narratives Following COVID-19.The Journal of medical humanities · 2025Article
- Co-creating a social science research agenda for Long Covid.Frontiers in public health · 2025Article
- Long COVID and Health Inequalities: What's Next for Research and Policy Advocacy?Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Effectiveness of an online multimodal rehabilitation program in long COVID patients: a randomized clinical trial.Archives of public health = Archives belges de sante publique · 2024Article
- What is current care for people with Long COVID in England? A qualitative interview study.BMJ open · 2024Article
- Managing long COVID symptoms and accessing health services in Brazil: A grounded theory analysis.Heliyon · 2024Article
- "I Had to Know About It, I Had to Find It, I Had to Know How to Access it": Experiences of Access to Rehabilitation Services Among People Living with Long COVID.Physiotherapy Canada. Physiotherapie Canada · 2024Article
- Illness Experiences of Brazilian People Who Were Hospitalized Due to COVID-19 and Faced Long COVID Repercussions in Their Daily Life: A Constructivist Grounded Theory Study.Behavioral sciences (Basel, Switzerland) · 2023Article
- Epistemic and institutional recognition work in changing conditions of social visibility: Anosmia's journey from the shadows to the spotlight.Social science & medicine (1982) · 2023Article
- Developing a peer-led intervention to promote COVID-19 testing in low-income housing settings.Frontiers in public health · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 2 countries.
Funding
Abstract
Since the first wave of COVID-19 in March 2020 the number of people living with post-COVID syndrome has risen rapidly at global pace, however, questions still remain as to whether there is a hidden cohort of sufferers not accessing mainstream clinics. This group are likely to be constituted by already marginalised people at the sharp end of existing health inequalities and not accessing formal clinics. The challenge of supporting such patients includes the question of how best to organise and facilitate different forms of support. As such, we aim to examine whether peer support is a potential option for hidden or hardly reached populations of long COVID sufferers with a specific focus on the UK, though not exclusively. Through a systematic hermeneutic literature review of peer support in other conditions (57 papers), we evaluate the global potential of peer support for the ongoing needs of people living with long COVID. Through our analysis, we highlight three key peer support perspectives in healthcare reflecting particular theoretical perspectives, goals, and understandings of what is 'good health', we call these: biomedical (disease control/management), relational (intersubjective mutual support) and socio-political (advocacy, campaigning & social context). Additionally, we identify three broad models for delivering peer support: service-led, community-based and social media. Attention to power relations, social and cultural capital, and a co-design approach are key when developing peer support services for disadvantaged and underserved groups. Models from other long-term conditions suggest that peer support for long COVID can and should go beyond biomedical goals and harness the power of relational support and collective advocacy. This may be particularly important when seeking to reduce health inequalities and improve access for a potentially hidden cohort of sufferers.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.