ArticleSociology of health & illness2024
Diagnosis and the practices of patienthood: How diagnostic journeys shape illness experiences.
Article in Sociology of health & illness, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- From Lived Experiences to Systemic Change: Patient Perspectives on the Diagnostic Journey of Loeys-Dietz Syndrome.CJC open · 2026Article
- Anything but Endo: Diagnostic Buck-Passing in Endometriosis Diagnosis.Sociology of health & illness · 2026Article
- Carework as resistance: How incarcerated women care for each other to survive carcerality amid a global pandemic.Medical anthropology quarterly · 2025Article
- The impact of cancer expectations on psychological responses following a cancer signal detected result in asymptomatic multi-cancer detection (MCED) testing.British journal of cancer · 2025Article
- Post Covid-19 Condition as a Diagnosis: A Qualitative Study on Epistemological Tensions Among Experts in Sweden.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Perceptions and Significance of Long Covid Diagnoses From the Perspectives of Children and Young People With Long Covid, Their Parents and Professionals.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Navigating the Limits of Diagnosis: Young Adults' Experiences of Chronic Living.Sociology of health & illness · 2025Article
- Introducing the pictogram-based ocular motor and visual-perceptual symptom scale: a multinational, cross-cultural feasibility study.Frontiers in neurology · 2025Article
- Identifying Facilitators and Inhibitors of Shared Understanding: An Ethnography of Diagnosis Communication in Acute Medical Settings.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- 'I Do It All Alone': The Burdens and Benefits of Being Diagnosed With, and Treated for, Colorectal Cancer During the Covid-19 Pandemic.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- At the Heart of Resilience: Empowering Women's Agency in Navigating Cardiovascular Disease.CJC open · 2024Review
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
Sociologists have a rich history of studying the process of diagnosis and how people experience illness. Yet, the sociology of diagnosis and illness experience literatures have seldom been fully integrated. Instead, these literatures highlight one element of the illness journey, wherein scholars either primarily study diagnostic processes and categories or people's illness experiences. Drawing on empirical studies that examine diagnosis and experiences of illness in varied settings (diagnosis during breast cancer surveillance, diagnosis and experience of autoimmune illness and incarcerated women's experiences of diagnoses and illness), in this article we build on our concept of regimes of patienthood to explain how diagnostic journeys, and the relations and power dynamics that manifest during this time, shape the illness experience and practices of patienthood. We construct a classification of diagnostic processes grounded in our empirical research that span (1) sudden diagnoses, (2) long, changing diagnostic journeys and (3) diagnostic journeys marked by disbelief and denial of care. Our findings demonstrate how diagnostic journeys and illness experiences are intertwined, with different diagnostic pathways impacting how illness is experienced. Analysing these categories collectively demonstrates that diagnostic journeys, while heterogenous, shape the practices that patients develop to manage health conditions and navigate unequal health-care encounters.
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