SynthesisHealth research policy and systems2023
Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis.
Synthesis in Health research policy and systems, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed.
- Embedding Consumer-Led Research in a Comprehensive Cancer Centre Alliance: A Mixed-Methods Evaluation.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Development of a Humanistic Interprofessional Healthcare Model for a Regional Swiss Hospital Using Community-Based Participatory Action Research.International journal of environmental research and public health · 2026Article
- Understanding strengths, weaknesses, opportunities, and threats to organizational-level family engagement in two childhood-onset disability research organizations.Research involvement and engagement · 2026Article
- Patient partnership in primary health care systems of the future: a structured priority setting exercise.Research involvement and engagement · 2026Article
- [Including the perspectives of people affected by disease (patients and others) at the Institute for Quality and Efficiency in Health Care (IQWiG) with a focus on the development of health information].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2026Review
- Rethinking measurement of health outcomes in Long COVID: complexities, challenges and considerations.Health and quality of life outcomes · 2026Article
- Community-Led Solutions to Build Safer, More Equitable Places to Birth: The Baltimore Patients as Partners Project.Maternal and child health journal · 2026Article
- Developing the Community Paramedicine Needs Assessment Tool.Nursing reports (Pavia, Italy) · 2025Article
- Addressing ableism in healthcare: integrating critical disability theory into health services research.International journal for equity in health · 2025Review
- Validation of a method for synthesizing public consultations to inform decision-making in health technology assessment (HTA) in Brazil: a Delphi consensus.BMC health services research · 2025Article
- Patient and Public Involvement in Paediatric Pragmatic Randomized Controlled Trials: A Mixed Methods Study.Children (Basel, Switzerland) · 2025Article
- Fostering Physician-Patient Partnerships: The Importance of Embracing the Ontological and Epistemological Understandings of Knowledge.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Six ways to get a grip on co-creating curriculum with patients.Canadian medical education journal · 2025Article
- Developing an evaluation tool for the impact of consumer partnerships in healthcare governance: a coproduced mixed methods study.BMJ open quality · 2025Article
- Systematic Review of Patient and Caregiver Involvement in CKD Research.Kidney international reports · 2025Article
- Piloting an In Situ Training Program in Video Consultations in a Gynaecological Outpatient Clinic at a University Hospital: A Qualitative Study of the Healthcare Professionals' Perspectives.Healthcare (Basel, Switzerland) · 2025Article
- Patients as knowledge partners in the context of complex chronic conditions.Medical humanities · 2025Article
- Supporting the continuous development and use of a patient partnership framework in European rare disease networks (ERNs): a scoping review of frameworks in the scientific literature.Journal of community genetics · 2025Review
- Harnessing the promises of cell therapy, gene therapy, and regenerative medicine in Québec, Canada.Frontiers in medicine · 2025Article
- Empowering partnership: key lessons from the co-development of patient-oriented research with parents, researchers, and healthcare professionals.Frontiers in health services · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
13 authors.
Funding
Abstract
backgroundWith the sharp increase in the involvement of patients (including family and informal caregivers) as active participants, collaborators, advisors and decision-makers in health systems, a new role has emerged: the patient partner. The role of patient partner differs from other forms of patient engagement in its longitudinal and bidirectional nature. This systematic review describes extant work on how patient partners are conceptualized and engaged in health systems. In doing so, it furthers the understanding of the role and activities of patient partners, and best practices for future patient partnership activities.
methodsA systematic review was conducted of peer-reviewed literature published in English or French that describes patient partner roles between 2000 and 2021 in any country or sector of the health system. We used a broad search strategy to capture descriptions of longitudinal patient engagement that may not have used words such as "partner" or "advisor".
resultsA total of 506 eligible papers were identified, representing patient partnership activities in mostly high-income countries. These studies overwhelmingly described patient partnership in health research. We identified clusters of literature about patient partnership in cancer and mental health. The literature is saturated with single-site descriptive studies of patient partnership on individual projects or initiatives. There is a lack of work synthesizing impacts, facilitating factors and outcomes of patient partnership in healthcare.
conclusionsThere is not yet a consolidated understanding of the role, activities or impacts of patient partners. Advancement of the literature has been stymied by a lack of consistently used terminology. The literature is ready to move beyond single-site descriptions, and synthesis of existing pockets of high-quality theoretical work will be essential to this evolution.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.