Evidence map›Paper›PMID 36691164›Full record

ArticleBMJ open2022

Developing an Australian Melanoma Clinical Outcomes Registry (MelCOR): a protocol paper.

Dale Jobson, Benjamin Roffey, Renee Best, Alison Button-Sloan, Danica Cossio, Sue Evans, Catherine Shang, Julie Moore, Christopher Arnold, Graham Mann and 5 more

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.4field-weighted citation impact, top 37% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 4 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 7 institutions in 1 country.

Dale JobsonVictorian Melanoma Service, Alfred Health, Melbourne, Victoria, Australia.ORCID 0000-0002-5918-3484
Benjamin RoffeySchool of Public Health and Preventative Medicine, Monash University, Melbourne, Victoria, Australia.
Renee BestMonash University, Melbourne, Victoria, Australia.
Alison Button-SloanAustralian Melanoma Consumer Alliance, Melbourne, Victoria, Australia.
Danica CossioCancer Alliance Queensland, Princess Alexandra Hospital, Brisbane, Queensland, Australia.
Sue EvansSchool of Public Health and Preventative Medicine, Monash University, Melbourne, Victoria, Australia.
Catherine ShangVictorian Cancer Registry, Cancer Council Victoria, Melbourne, Victoria, Australia.
Julie MooreCancer Alliance Queensland, Princess Alexandra Hospital, Brisbane, Queensland, Australia.
Christopher ArnoldHodgson Associates, Melbourne, Victoria, Australia.
Graham MannMelanoma Institute Australia, The University of Sydney, Sydney, New South Wales, Australia.
Mark ShackletonCentral Clinical School and School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.ORCID 0000-0002-7673-4655
H Peter SoyerThe University of Queensland Diamantina Institute, The University of Queensland, Brisbane, Queensland, Australia.
Rachel L MortonMelanoma Institute Australia, The University of Sydney, Sydney, New South Wales, Australia.
John ZalcbergSchool of Public Health and Preventative Medicine, Monash University, Melbourne, Victoria, Australia.
Victoria MarVictorian Melanoma Service, Alfred Health, Melbourne, Victoria, Australia victoria.mar@monash.edu.
Alfred Health · AUCancer Council Victoria · AUMonash University · AUPrincess Alexandra Hospital · AUAustralian National University · AUThe University of Queensland · AUThe University of Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionAustralia has the highest incidence of melanoma in the world with variable care provided by a diverse range of clinicians. Clinical quality registries aim to identify these variations in care and provide anonymised, benchmarked feedback to clinicians and institutions to improve patient outcomes. The Australian Melanoma Clinical Outcomes Registry (MelCOR) aims to collect population-wide, clinical-level data for the early management of cutaneous melanoma and provide anonymised feedback to healthcare providers. METHODS AND ANALYSIS: A modified Delphi process will be undertaken to identify key clinical quality indicators for inclusion in the MelCOR pilot. MelCOR will prospectively collect data relevant to these quality indicators, initially for all people over the age of 18 years living in Victoria and Queensland with a melanoma diagnosis confirmed by histopathology, via a two-stage recruitment and consent process. In stage 1, existing State-based cancer registries contact the treating clinician and provide an opportunity for them to opt themselves or their patients out of direct contact with MelCOR. After stage 1, re-identifiable clinical data are provided to the MelCOR under a waiver of consent. In stage 2, the State-based cancer registry will approach the patient directly and invite them to opt in to MelCOR and share identifiable data. If a patient elects to opt in, MelCOR will be able to contact patients directly to collect patient-reported outcome measures. Aggregated data will be used to provide benchmarked, comparative feedback to participating institutions/clinicians. ETHICS AND DISSEMINATION: Following the successful collection of pilot data, the feasibility of an Australia-wide roll out will be evaluated. Key quality indicator data will be the core of the MelCOR dataset, with additional data points added later. Annual reports will be issued, first to the relevant stakeholders followed by the public. MelCOR is approved by the Alfred Ethics Committee (58280/127/20).

Indexed as

MelanomaSkin NeoplasmsAdultBenchmarkingHumansMiddle AgedRegistriesVictoriadermatological tumourshealth informaticsinformation managementprotocols & guidelinesquality in health care

Identifiers

PMID36691164
PMCPMC9442481
OpenAlexW4294266910

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.