Evidence map›Paper›PMID 36689884›Full record

Trial reportPatient education and counseling2023

Question prompt lists and caregiver question asking in pediatric specialty appointments: A randomized controlled trial.

Margaret Waltz, Haoyang Yan, R Jean Cadigan, Courtney Canter, Lizzy Bain, Jeannette T Bensen, Carol Conway, Chad Haldeman-Englert, Laura Farnan, Ann Katherine M Foreman and 10 more

Abstract readRandomized Controlled Trial
PubMed Full text at PMC Publisher
In one paragraph

Trial report in Patient education and counseling, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Group-based medical mistrust in genomic medicine: Associations with patient and provider perceptions of a specialty clinical encounter.Genetics in medicine : official journal of the American College of Medical Genetics · 2024
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

20 authors.

Margaret WaltzDepartment of Social Medicine, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA. Electronic address: margaret_waltz@med.unc.edu.
Haoyang YanDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
R Jean CadiganDepartment of Social Medicine, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Courtney CanterDepartment of Anthropology, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Lizzy BainParent/Advocate, Knightdale, NC, USA.
Jeannette T BensenDepartment of Epidemiology, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Carol ConwayParent/Advocate, Parent Advocates for Adult Children with Intellectual &/or Developmental Disabilities in NC, Chapel Hill, NC, USA.
Chad Haldeman-EnglertFullerton Genetics Center, Mission Health, Asheville, NC, USA.
Laura FarnanLineberger Comprehensive Cancer Center, University of North Carolina, Chapel Hill, NC, USA.
Ann Katherine M ForemanDepartment of Genetics, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Tracey L GrantDepartment of Genetics, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Barbara LeachParent/Advocate, Family Support Program, School of Social Work, UNC Chapel Hill, Chapel Hill, NC, USA.
Feng-Chang LinDepartment of Biostatistics, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Madeline MahlaDepartment of Genetics, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Julianne M O'DanielDepartment of Genetics, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Suzanne C O'NeillDepartment of Oncology, Georgetown University, Washington, DC, USA.
Gerri SmithParent/Advocate, Holly Springs, NC, USA.
Bradford C PowellDepartment of Genetics, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Jonathan S BergDepartment of Genetics, University of North Carolina, Chapel Hill, Chapel Hill, NC, USA.
Christine M RiniDepartment of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA; Robert H. Lurie Comprehensive Cancer Center of Northwestern University, Chicago, IL, USA.

Funding

North Carolina Clinical Genomic Evaluation by Next-gen Exome Sequencing 2U01HG006487 · NHGRI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BERG, JONATHAN S, POWELL, BRADFORD C. · 2012 to 2021
$22.7M
NHGRI NIH HHS U01 HG006487
6 · The paper itself

Abstract

objectiveQuestion prompt lists (QPLs) have been effective at increasing patient involvement and question asking in medical appointments, which is critical for shared decision making. We investigated whether pre-visit preparation (PVP), including a QPL, would increase question asking among caregivers of pediatric patients with undiagnosed, suspected genetic conditions.

methodsCaregivers were randomized to receive the PVP before their appointment (n = 59) or not (control, n = 53). Appointments were audio-recorded. Transcripts were analyzed to determine questions asked.

resultsCaregivers in the PVP group asked more questions (Mean

conclusionThe PVP increased question asking but worked less effectively among traditionally underserved groups. Additional interventions, including provider-focused efforts, may be needed to promote engagement of underserved patients. PRACTICE IMPLICATIONS: Patient/family-focused interventions may not be beneficial for all populations. Providers should be aware of potential implicit and explicit biases and encourage question asking to promote patient/family engagement.

Indexed as

CaregiversCommunicationChildHumansPatient ParticipationPhysician-Patient RelationsSurveys and QuestionnairesGenetic conditionsPatient engagementPatient-provider communicationPediatricsQuestion prompt lists

Identifiers

PMID36689884
PMCPMC9931668

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.