ArticleJMIR human factors2023
Patients' Information Needs Related to a Monitoring Implant for Heart Failure: Co-designed Study Based on Affect Stories.
Article in JMIR human factors, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
3 citing papers in PubMed, 8 citations in OpenAlex.
- A systematic review on patient and public attitudes toward health monitoring technologies across countries.NPJ digital medicine · 2025Article
- Noninvasive biometric monitoring technologies for patients with heart failure.Heart failure reviews · 2025Review
- Human Factors and Organizational Issues in Health Informatics: Review of Recent Developments and Advances.Yearbook of medical informatics · 2024Review
Corrections and comments
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRealWorld4Clinic is a European consortium that is currently developing an implantable monitoring device for acute heart failure prevention.
objectiveThis study aimed to identify the main issues and information needs related to this new cardiac implant from the patients' perspective.
methodsA total of 3 patient collaborators were recruited to help us design the study. During 4 remotely held meetings (each lasting for 2 hours), we defined the main questions and hypotheses together. Next, 26 additional interviews were conducted remotely to test these hypotheses. During both phases, we used affect stories, which are life narratives focusing on affect and the relationship between patients and the care ecosystem, to highlight the main social issues that should be addressed by the research according to the patients.
resultsContext of diagnosis, age, and severity of illness strongly influence patient experience. However, these variables do not seem to influence the choice regarding being implanted, which relies mostly on the individual patient's trust in their physicians. It seems that the major cause of anxiety for the patient is not the implant but the disease itself, although some people may initially be concerned over the idea of becoming a cyborg. Remote monitoring of cardiac implants should draw on existing remote disease management programs focusing on a long-term relationship between the patient and their medical team.
conclusionsCo-design with affect stories is a useful method for quickly identifying the main social issues related to information about a new health technology.
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Registered trials
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